I'm 46 and just had my CP diagnosis — Scope | Disability forum
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I'm 46 and just had my CP diagnosis

chaskins
chaskins Community member Posts: 2 Listener
edited September 2022 in Cerebral palsy
Hello everyone.  I'm 46 and just had my CP diagnosis,  mad as it sounds. I've always known something was different growing up, but as its only mild its its never been picked up or been an issue, until the last year I've been in constant back pain , due to the way I walk.
I have an appointment with neurology next week to find out what type I have.
I'm struggling to come to terms with this and worried how it's going to affect me in the future. 

Comments

  • Adrian_Scope
    Adrian_Scope Testing team Posts: 10,599 Scope online community team
    Good afternoon @chaskins and a warm welcome to the community. You're definitely not alone in receiving a diagnosis as an adult, we've had a few members with similar experiences. 

    I've tagged @Richard_Scope our CP information specialist and CP programme lead to see if he can offer you any support. 

    Best of luck with your appointment next week. Do you have someone going with you?
    Community Manager
    Scope
  • Richard_Scope
    Richard_Scope Posts: 3,614 Scope online community team
    Hi @chaskins

    Thanks for your post. I have CP too and we are about the same age. The diagnosis must have come as a shock to you and of course, you will have concerns.

    Has anybody taken the time to explain cerebral palsy to you?

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • chaskins
    chaskins Community member Posts: 2 Listener
    Thank you for the replies. It's come as a shock. I've always just got on with things, thinking not much about it. 
    I've been seeing neuro physio and had a muscleoskeletal assessment.  Only to be told the pain I have will get progressively worse due to the wear and tear on my muscles down to the way I walk . Hoping seeing neurology consultant next week will explain more as no one has really examined much to to, just keeping me dosed up on painkillers which I don't really want to rely on.
    I'm totally out of my depth and have no idea really what the future holds. All a bit worrying to be honest.
    Thank you for having someone to vent to and ask for help, much appreciated. 
  • Richard_Scope
    Richard_Scope Posts: 3,614 Scope online community team
    It is a real positive that you have already seen those medical professionals. What I will say is they have to give you all of the information and that also includes a worst-case scenario. It doesn't necessarily mean that it will happen. 
    Have the neurology appointment and then we can discuss things.

    At the moment I don't want to bombard you with lots and lots of information. I am always around for a chat and to answer any of your questions here, in the community or via my Scope email.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 

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