Scored zero on all part of my pip!

failedbythesystem01

i was awarded zero on all parts of my assesment i have below sent this in a letter form to them i did call to tell them all that below over the phone but the guy was like you dont have to talk about the SAME stuff again but thats the point I DO !!! 

as none of my problems have been taking into account what so ever ! 

i am writing this regards to my pip consultation report

and going through the report and pin pointing the wrongs and corrections that have been written about my illnesses.

 

YES this goes over my illneses AGAIN in detail but i think its important you understand the severity of things and how it effects me as its fallen on death ears previously .

i called today 18/10/2022 to refer this letter over the phone but he said we dont need to know again but stuff

but i would rather it was documented in finer detail for whom is reading!

i have included some other evidence with this letter

 

diagnosed with depression anxiety and cognitive function in 2019

yes i do get suicide thoughts on a weekly basis these thoughts never leave my head with constantly being alone with no other support network it gets really hard to cope on most days with only phone calls from my father who to i add isnt a real support as he doesn't help me .

other than that their is no other person here i have no family what so ever nor friends to reach out to .

i have been admitted to hospital in 2019 when i had a black out in my bedroom and collapsed woke up with blood all over my face broken nose and injuries i phoned an ambulance and was admitted for treatment .

i was back in hospital in 2021 for surgery on my deviated nose prior to the accident i had in 2019 with my nose .

i have never been diagnosed with what is the cause of my black outs which i may add is sometimes weekly seeing stars . blurry vision . feeling light headed .

and yes i have had CBT sessions and psychology sessions which did not help it actually causes me major stress and more anxiety opening up just doesn't help me and nobody really understands my position .

they then finished at the start of lock down i had some phone calls with the person which then again causes me stress.

the smallest thing even such as a phone call causes me anixety talking to people causes me stress makes me sweat hands go all sticky . i need to go to the toilet a lot more also

have diareha and sore stomch cause of this .

 

i have asmtha most of my life it was managed ok as a child but as a adult it has worsened a lot it plays up with my anxiety and triggers it or vice versa .

short of breathe when walking , panic attacks also when in public which is horrible as i panic and feel scared .

injured my back in 2015 doctor suggested it was ripped tendons in my black ever since it has given me severe pain when sitting more so when standing , cannot stand for long periods of time as i get shooting paints down my back and neck take pain killers from the doctors which help at the time for a few hours but mainly mask the pain.

i havent had an x ray on it cause my practice wont refer me for one!

you are lucky if you can get a phone call appointment .

last time i called they asked how bad it was on the phone and i told them i can hardly stand up and they dished out some painkillers for me with out dignosing the issue face to face

was promised physio apoointments which i have still not recieved .

i take my medications stated in this report and they do help me and keep me on an evan keel to a certain extend keep me stable .

i have taken them for a long period but that is only cause keep me stable .

i have tried other anti depresants when it gets worse but they make me feel even worse with side effects!

their is no care support as i never am offered any ?

i have tried in the past to get other help from services which was unsuccesful .

my memory can differ as i forget things regurly and i use footnotes or things to remind me which i did state in the phone call . this has also been forgotten about

and yes i had a bus pass to use to get out the house or to travel up the town in which ran out in june! and i now dont have that!

and i have never been employed due to my mental health or illneses i am to ill to work!

i have recieved benefits for many years my illneses are on going !

but yet i have been told theirs nothing wrong with me which i find disgusting .

how can someone who has been unwell for so long suddenly score zero points .

i wish i wasnt mentally ill and have the struggles i have if that wasnt the case i would happily go out and work .

do i enjoy being ill no ? but i have no other choice but to try and struggle on with my hurdles daily .

i do not have any hobbies or interests . i cant even watch the tv because i cant concintrate to watch anything .

i do my shopping online via app on phone and i dont talk to them when they drop it off.

i very rarely do house work as i have no motivation .

ill leave bin bags lying diry dishes etc because its to much of an effort.

 

following on with the variability of the assesment part .

i am lucky if i get one good day a week where i feel normal in myself .

most days are bad i dont get out of bed i wont open the curtains i wont answer the phone to my father .

i dont want to talk to anyone ill hide away for days , wont go to the shop for essentials , wont eat any meals either.

i suffer panic attacks on a weekly basis , triggered by my anixety or asmtha i try to calm my self down with deep breathing which doesnt help it makes it worse i use my inhaylors when this happens .

i also do get agressive and paranoid mainly in public i can feel paranoid if people are staring at me can feel they are talking about or laughing at me . it makes me angry and i feel i want to punch them . this has happened often in shops or busy places .

i feel so isolated and live inside my head most of the time and when out in public my mind can be in a different place . often beeped by traffic because i am not looking where i am going . this happens rarely as i wont go out the door most of the time .

 

i have spilt hot water or drinks on myself before and burned my hands , arms

i have cut myself with knifes by accident as well because my hands are always shakey .

i am not independant with taking my medication as i need prompted with reminders either from notes on fridge or phone calls from my dad .

i do suffer with bowl issues when outside as have often wet or done toilet because of my anxiety and not been able to reach a toilet in time .

this is very distressing for me and causes me to have panic attacks .

i cannot get into a physical or sexual relationship with anyone as it causes me to much stress and i feel claustrophobic around them it makes me have panic attacks .

also i cannot trust them i think they are going to harm me or abuse my trust .

i find talking to people or engaging with them a massive struggle i wont look at them in the face or make eye contact with them .

it makes me anxious and paranoid .

even writing this is making my palms and under arms sweat dredging up my mental health or daily problems .

but the assesor agrees i suffer these problems mentioned but yet at the end of it claims i have no issues which is a contridction in its self .

making budgeting decisions is no issue as they are direct debit so i dont really have to worry about these . but i always worry about finances with the ever increase in living .

planning journeys is always been a problem i hate public transport or taxis because of people and the fear of them talking to me. i travel maybe once a week to the town a ten minute bus journey i used to travel more but i feel so low i dont want to go out the door .

i do not travel on the bus now as my bus pass has ran out .

even having that there made me feel safe as it was a means of travel if need be to get out the house .

yes i do stay in the house and dont go out as that is my comfort zone and where i feel safe not to say i dont feel scared in the house as i do too.

i wont even look out my window if i hear people outside as i wouldnt want them seeing me .

yes my anixety is massively worse when im out side i choose to stay in but that does not suggest just cause im in doors im ok which is totally not true as its still really bad when in the house to the point where its causing me severe anxiety and stress .

 

i do go into panic mode when going out in public i can panic in the house too my anxiety never really goes away i can have maybe 1 good day where it is ok .

but it never has gone away along with my mental health also

having the constant thoughts of suicide and hating life and hating myself is such a struggle battling my emotions and fears is a horrible existance .

i can walk to the local shop 5 minutes up the road any longer and it triggers pain in my back shooting paints up my spine and neck stiff and sore .

i would then have to rest on a bench or seat to support the pain .

MENTAL STATE on the phone

well more lies as i stated on the build up to the call i was stressing out my box i went to the toilet about 5 times before the phone call i didnt sleep the night before either .

i was stuttering on the phone because of my anxiety .

i wasnt in pain on the phone because i was sitting down on the sofa.

i dont see how this determines just cause you have ok pain when on the phone or sitting down your not in pain its rediculous .

i also was sweating a lot when on the phone as it was making me nervous and stressing me out so much .

plus talking about my conditions was also draining me emotionaly .

and for someone who is classified as a nurse to deject my problems and seemingly suggest i am FIT AND OK is unfair .

i would atleast expect some sort of care and clarity from someone who is in that profession .

there is always been a stigma with mine and anyone elses mental disabilty as if you cant see it its not there.

iv dealt with this my whole life mental health issues is deredity through my family my mum was bi polar and my dad is dignoised phyzopheric .

i have post traumtic stress for years ever since my mum passed away in 2016 and battled my illneses even more so cause she was the only person to understand how bad it makes me feel every day .

i wish to be normal and out going and have a job and a family or girlfriend but i cant cause these things cause me anixety and stress even the smallest things causes me issues .

and also if you can cope with this assesment your OK another rediculous claim as just cause i spoke to the assesor on the phone doesnt mean im not UNWELL .

i spoke to her because i NEEDED to i had no other choice as i have to recieve my benefits

which now has been taken away from me!

the only small security i had which made my days a little less harder .

but this whole report has been overlooked wrongly as i stated in this earlier the nurse has clearly not seen it from how it effects me , yes she has stated SOME things that trouble me and even agreed with me but then said no hes fine at the end .

having to read through all this and with great hurt and anixety seeing that im apprently fine and i dont struggle with every day life is redicilous .

i hope the above information gives WHOM ever a better example how this really effects me .

even having to go into more detials has made me feel ill . 

poppy123456

In my honest opinion, it's far too long and a lot of it isn't really relevant. You've concentrated a lot on the assessment report and doing this isn't helpful. You need to put that to one side and forget about it because it's not going to get you a PIP award.

I found it difficult to read and follow. Some parts are ok but you need to be clear which descriptors apply to you and you haven't been clear at all.

You've mentioned being unable to work but PIP isn't about your ability to work. People claim PIP and work.

The most likely outcome of the MR will be the decision will remain the same. If this happens you can proceed to Tribunal but i'd advise you to get some expert advice and contact an advice agency near you.

Alex_Alumni

Hello @failedbythesystem01 and thanks for reaching out on the forum last night, I'm sorry to hear about the outcome of your PIP claim, and that having to go into more details has made you feel ill.

Applying for PIP can be a very wearing and difficult process, so make sure you look after your wellbeing and take a break from it all every now and then. You mention not having a support network, and regularly having suicidal thoughts. It sounds like this news on PIP is very distressing. We'd like to support you with how you're feeling as much as we can, so please keep an eye out for an email from community@scope.org.uk with information on how we can help. 

It's clear the impact of your conditions on you day to day hasn't been understood, but there is support out there with challenging your PIP decision. You can call or email the Scope Helpline for help from one of our advisers, or visit Turn2Us to read about what you need to do to challenge the decision. 

You can also search Advice Local to find a professional adviser local to you. Just search under the 'welfare benefits' topic. 

Let us know if we can help further with anything, we're here to help

Alex

failedbythesystem01

hi alex @Alex_Scope thanks for your positive supportive message ! what is the scope phone number 
and yes my illneses have been totally misunderstood from going on higher rate to ZERO i just dont get it 

calcotti

failedbythesystem01 said:

what is the scope phone number 

It's on the link Alex provided. 

Phone: 0808 800 3333.

Email: helpline@scope.org.uk.

failedbythesystem01

@Alex_Scope also iv been on it since 2017 and my health has gotten a lot worse since then and now a big fat zero 

Alex_Alumni

That's very frustrating to hear that you were previously higher rate @failedbythesystem01, please do keep us up to date with how you get on, and I hope the helpline team can help too