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GizmoTiddles
Community member Posts: 159 Pioneering
Not posted for a while, but have read in a lot. And send my best wishes to all
So for years I've had so many different diagnosis for the same problems/spinal pain that I experience.
The arguments I've had with the "professionals" when their recommendations came in.
Give me an MRI scan?
No, have a xray instead!
2015 1x TKR
2016 2x TKR
I had a DLA mobility award for years then (2018) at 68yrs Swapped over to a 10 Yr (extended +1yr) Enhanced +2 PIP award.
Form filling and the hurdles for that was a Big stretch of my mental state
Still complaining of spinal problems 2017/2018
Finally 2018 MRI on neck and another on lower spine.
Dr : Your hip is OK but you have DISH (Foresters desease).
What's that Dr?
Dr: Don't know I had to Google it.
Not a lot of specialist about but a long journey which didn't help and a 5 min consultation
Spurs growing on spine not worth operating on it at that time.
Refured for Acupuncture, which helped a little as I didn't have to take heavy morphine meds.
Then COVID got in the way and we are all still reaping the whorlwind of that.
All clinics canceled!
But life goes on.
Had enough of e-consults so this week I have a "worded" conversation at my surgery with the resident Rottweiler🤔
Got someone's attention as a phone consultant conversation the next day. (what a state the NHS is in)
Told to present mysrlf to A&E (Derriford).for an emergency MRI for Cauda Equina.
Wow! What an eye opener since last I visited, and to be told waiting time could be up to 17hrs😳
What was the orthopedics OP dept now a very overcrowded A&E. Outside was like an Ambulance rally,
I really felt sorry for all the patients waiting their turn for attention, and the staff were really doing their very best.
Better still I saw nobody complaining, in fact young and old in conversation whilst waiting 2 young guys since the day previous.
Booked in at 10.02
Triage 11ish
2nd Nuse 1230ish
Senior Nurse who had a long consult and actioned an MRI.
Back from scan by 1500.
Senior nurse again after viewing scan you have
Chronic Cauda Equina and 2 historic prolapsed discs showed me scan told me a little more waiting as I maybe admitted for an opp.
Not happening! will be contacted re outpatient app
So now back on the NHS merry-go-round
Would it have been different if I had tha MRI I asked for all those years ago?
Getting really fed up with it all.
Sorry fo the long post, but feel slightly better sharing.
Gizmo
So for years I've had so many different diagnosis for the same problems/spinal pain that I experience.
The arguments I've had with the "professionals" when their recommendations came in.
Give me an MRI scan?
No, have a xray instead!
2015 1x TKR
2016 2x TKR
I had a DLA mobility award for years then (2018) at 68yrs Swapped over to a 10 Yr (extended +1yr) Enhanced +2 PIP award.
Form filling and the hurdles for that was a Big stretch of my mental state
Still complaining of spinal problems 2017/2018
Finally 2018 MRI on neck and another on lower spine.
Dr : Your hip is OK but you have DISH (Foresters desease).
What's that Dr?
Dr: Don't know I had to Google it.
Not a lot of specialist about but a long journey which didn't help and a 5 min consultation
Spurs growing on spine not worth operating on it at that time.
Refured for Acupuncture, which helped a little as I didn't have to take heavy morphine meds.
Then COVID got in the way and we are all still reaping the whorlwind of that.
All clinics canceled!
But life goes on.
Had enough of e-consults so this week I have a "worded" conversation at my surgery with the resident Rottweiler🤔
Got someone's attention as a phone consultant conversation the next day. (what a state the NHS is in)
Told to present mysrlf to A&E (Derriford).for an emergency MRI for Cauda Equina.
Wow! What an eye opener since last I visited, and to be told waiting time could be up to 17hrs😳
What was the orthopedics OP dept now a very overcrowded A&E. Outside was like an Ambulance rally,
I really felt sorry for all the patients waiting their turn for attention, and the staff were really doing their very best.
Better still I saw nobody complaining, in fact young and old in conversation whilst waiting 2 young guys since the day previous.
Booked in at 10.02
Triage 11ish
2nd Nuse 1230ish
Senior Nurse who had a long consult and actioned an MRI.
Back from scan by 1500.
Senior nurse again after viewing scan you have
Chronic Cauda Equina and 2 historic prolapsed discs showed me scan told me a little more waiting as I maybe admitted for an opp.
Not happening! will be contacted re outpatient app
So now back on the NHS merry-go-round
Would it have been different if I had tha MRI I asked for all those years ago?
Getting really fed up with it all.
Sorry fo the long post, but feel slightly better sharing.
Gizmo
Comments
-
@GizmoTiddles you can't make it up can you. I don't know what your conditions are without googling. At least you got a diagnosis. Hopefully you get seen soon
-
Many thanks for that.Ada said:Hello @GismoTiddles
I am sorry you are suffering.
You really have been through it.
I do understand I have a few demons to fight. And have a crumbling spine.
It took me x3 years for a scan on my spine. A few years ago.
I am often offered morphine but refuse even though the pain I live with for various things is unbearable I don’t yet want morphine.
God Bless
If you can manage without it do so.
The problem taking it long term, you then need (or at least I did) other meds to counter side effects and I found I wasn't the one in charge of my body the meds were.
For a brief moment in time I was on morphine patches so no side effects. Then found I had an allergy to the adhesive.
So stopped.
Herbal tea and space cakes as I don't smoke worked, but that's another story.
Take care. -
Sandy_123 said:@GizmoTiddles you can't make it up can you. I don't know what your conditions are without googling. At least you got a diagnosis. Hopefully you get seen soon
Hopefully but not holding my breath
Nice thought though and cheers -
Bless you @GizmoTiddles i know exactly how you are feeling, my own condition has deteriorated greatly since the blumming covid !!!!!!
I have been under the hospital for years with my spinal problems, i had a new movement which has caused another problem, unfortunatly that happened just before covid and the hospitals have had to leave me to cope with it. I have now got to the stage were the only help they can give me is "Pain relief" I often think if it wasn't for covid the hospital would/could of done something in the early stages, and i wouldn't be in the mess i'm in now.
I hope you do not have to wait years to be seen, and you can find relief - it's awful how people are just being left.
Take care x -
Thank youSueHeath said:Bless you @GizmoTiddles i know exactly how you are feeling, my own condition has deteriorated greatly since the blumming covid !!!!!!
I have been under the hospital for years with my spinal problems, i had a new movement which has caused another problem, unfortunatly that happened just before covid and the hospitals have had to leave me to cope with it. I have now got to the stage were the only help they can give me is "Pain relief" I often think if it wasn't for covid the hospital would/could of done something in the early stages, and i wouldn't be in the mess i'm in now.
I hope you do not have to wait years to be seen, and you can find relief - it's awful how people are just being left.
Take care x -
You are welcome @GizmoTiddles. Our support is the very least you deserve.
Is there anything that might help things to feel more manageable for you at the moment? We are all here for you and listening to you if we can do anything else to support you
Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her.
Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only. -
Thank you but at this time, things have to run its course up through the chain of command that is the NHS, getting rid of the "managers" that do very little would help but that's not going to happen in my lifetime.
Just had a moment last eve 😔
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