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Back Again!

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JamesWr1972
JamesWr1972 Community member Posts: 3 Listener
I have had to register again, due to forgetting my password. 
Anyway, I'm 50 married. Four kids age 22,20,15 and our daughter age 6. Three boys have disabilities. I myself have end stage respiratory disease, including Bronchiectasis and Emphysema. 

There are always possibilities. 

Comments

  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
    edited November 2022
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    Hello @JamesWr1972

    Oh no, how frustrating that you have had to register again! In the future, could you contact the Scope team by emailing community@scope.org.uk

    I am just thinking that they may be able to reset your password rather than you having to register again.

    Thanks for spending some time introducing yourself though. How are you finding things at the moment?

    Take care for now and we will look forward to hopefully hearing from you again soon  :)

    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • JamesWr1972
    JamesWr1972 Community member Posts: 3 Listener
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    Thanks for the reply. The family are finding it really difficult at the moment, we're wanting to make this house, our home but it's impossible. We've been here since January, and we haven't even been able to decorate. It's extremely depressing, sitting here with army colours on the walls, and plaster coming off in chunks, both on the walls and ceilings. It's also bitterly cold. Yes we have heating, but it's pointless putting it on for long. It just goes straight out the windows, front door and loft. Plus, we have the same problem as most people, in that it's costing a fortune. 
    The kids all have coughs and colds, I myself have yet another moraxella and streptococcus chest infection, which will mean being in hospital sooner or later. 
    Just more than we can cope with. 
    There are always possibilities. 
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
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    @JamesWr1972 Hello there and thanks for taking the time to re-register. If you want us to re-set the password on your old account, just let us know.

    I'm sorry to hear things aren't going so great right now. It's no fun at all being ill, or having your children poorly and trying to manage the best you can. Have you informed your GP or medical team about your chest infection? 

    In relation to your heating, Scope have a lovely, free Disability Energy Support team who you can talk to in more detail about your circumstances, and they can advise about:
    • managing energy and water debt
    • changing your meter
    • energy and water efficiency
    • accessing benefits, grants, and trusts
    • free fuel vouchers (conditions apply)
    • contacting or complaining to your supplier
    • understanding your gas and electricity bills
    • understanding how to use your heating systems
    Whilst, I don't know about your housing situation, but if you are renting from a social housing landlord then they are responsible for repairs set out in your tenancy agreement. See this Citizens Advice webpage for more details. 

    How are your children? It sounds like they keep you busy, I just have the one toddler and I never stop so credit to you  :D

    If we can help you in any way, we really would love to so please keep talking and we can be here for you. Take care and all the best. 
    Online Community Co-ordinator

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