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Hi, my name is alib78!

alib78 Community member Posts: 1 Listener
Hi, I'm new 
I read one of the previous messages, I to  have Cerebral palsy and Fibromyalga. For year I could do things well. I'd had alot of operation which initially helped. I had all the physio. Splits and special shoe. But wasn't able to work due to epilepsy. But I felt and still do feel lucky and there are several types of Cerebral palsy and given the nature of my birth and the following months. I know it could have been worse as my communication is good ect. I got married and despite the judgmental one's out there I have 3 beautiful children. I had my electric scooter adapted so I could have a baby carrier on the back. Ect. But after my 3rd and finding out I had a genetic condition on top that took a lot of getting used to and I started getting wide spead pain for years. I was told it nothing just age ect. Then they sent me to see a rumatoidologist. And I was diagnosed with Fibromyalga. I feel vindicated but on my good day there doesn't seem much wrong on my bad I can be in bed for days. No rime or reason, I'm just so thankful despite everything that I was able to have children and chose to do so in my early 20's. I would have been able to 10yrs ago. They are almost grown up 2 have moved out. But it not easy to plan things from day to day as despite 30 meds a day for various things. Still in chronic pain and fatigue, then insomnia at night time. I'm so so proud to be a mum of 3 amazing young people. When I was younger I did voluntary eork in a school with special educational needs children. My family seem to have been my purpose and drive in life and I love them so much.


  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
    Hi and welcome to the community Feel free to join in or ask any questions 
  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
    Good morning @alib78 welcome to our great group, look forward to seeing you around.
    Any problems just ask, there's nearly always some one on line.
    We have lots going on, a few of us like the coffee lounge, great place for general chats and to get to know other members, Enjoy.
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
    Hello and welcome to the community @alib78 and thank you for sharing your story with us :) It's lovely to hear about your family too!

    You're most welcome to explore the forum, and you might like to visit our Cerebral Palsy category to chat with members with lived experience of CP, I'm one of them. 

    I'll tag my colleague @Richard_Scope as he's our CP information officer, and also helps manage the CP Network within Scope, so chat to him if that's something of interest.

    If you need a hand with anything, just ask, and I look forward to seeing you around.

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