Hi, my name is debw123! Scared about proposed cuts to PIP

debw123
debw123 Online Community Member Posts: 1 Listener
edited April 6 in PIP, DLA, ADP and AA

Hi everyone, I am disabled and am so scared by proposed cuts to PIP, I am enhanced for both , but scored 2s in daily living, but having multiple problems is just as bad as having 1 serious problem. I pay for help to keep my house clean, for help with my many meds, help with ironing etc, and will no longer be able to live independently, as unable to do many things.

Comments

  • luvpink
    luvpink Online Community Member Posts: 1,940 Championing

    Hi and a very warm welcome to the community.

    Most of us here are very worried especially about the proposed 4 point rule.

  • Robroy31
    Robroy31 Online Community Member Posts: 11 Listener
  • Robroy31
    Robroy31 Online Community Member Posts: 11 Listener
  • Robroy31
    Robroy31 Online Community Member Posts: 11 Listener

    Hi Jackie here

    My sons pip is up for review next year. How will it work the changes to pip? I know about the scoring of 4 points. If he is refused then does he get help to look for a job because we have tried when he was younger to get help from job centre we saw a disability advisor who could only recommend we look on the indeed job website. I don't know what Job he could do . He has lots of disabilities that would have to be taken into account. Does anyone have any advice please thanks a worried mum

  • anisty
    anisty Online Community Member Posts: 792 Trailblazing
    edited April 5

    You are getting ahead of yourself, @Robroy31 . First of all, these changes are proposed changes. They might come into effect, they might not.

    Secondly, if they do come into effect, they don't start til November next year. If your son's award is up for review before then, he will be assessed on current criteria.

    Regarding any work he could do, that depends on the nature of his disability and the opportunities in your area. Some supermarkets offer opportunities for those with learning difficulties. I have seen one or two young workers with Downs Syndrome at my local Asda, for eg.

    My own son has a mild learning disability and also autism. It is very unlikely he could ever be in unsupported employment but he fills his week with a combination of voluntary work and paid, supported work in a social enterprise cafe.

    He also had support via the Employability Support Network which was via our local council (Scotland)

    If your son's disabilities are physical and he is cognitively able, check out job opportunities at your local council. They might offer a guaranteed interview scheme for disabled people.

    It is not easy, but with determination it might be possible to find something.

  • Robroy31
    Robroy31 Online Community Member Posts: 11 Listener

    Hi my son had leaukmia at 2 years old the chemo he had has left him with physical disabilities peripheral neuropathy in his feet legs arms and hands his hamstring on his right leg hasn't devolved its too short causes extreme pain in the last 8 years a swelling on his hip area has devolped which they thought might of been a tumour but its the nhs can't do anything they said he falls at lot too. His mouth was damaged by a dentist at 13 with pain that's so severe that will never go away he has dyspraxia and other disabilities he's 33 his mental health has deteriorated he's having counselling at present He so wishes there was a job suitable for him it's the extreme pain that's the problem thank you though I know I'm too far ahead but the money he gets from his pip pays for a chiropractor every week to try help the swelling

  • anisty
    anisty Online Community Member Posts: 792 Trailblazing

    I understand how worrying these potential changes to welfare are for so many people but it sounds like your son has more severe disabilities and, remember, for severely disabled people PIP will continue.

  • Robroy31
    Robroy31 Online Community Member Posts: 11 Listener

    Thanks very much for your advice.

  • Rosie_Scope
    Rosie_Scope Posts: 5,460 Scope Online Community Coordinator

    Hi @debw123, it's not an easy time and you're not alone in feeling scared about the proposals. Scope are campaigning about it through our Cost of Cuts campaigns and many other charities will be fighting for disabled people too. You can read Scope's letter to the chancellor and join in with our campaigns here:

    The cost of cuts to disability benefits: Our open letter to the Chancellor | Disability charity Scope UK

    I hope the community can be a place of support for you. As I mentioned, you're definitely not alone in your feelings here. Hope you're coping okay at the moment 💜

  • emc123
    emc123 Online Community Member Posts: 114 Empowering
    edited April 9

    You say May or may Not but the 4 point Minimum is Not up for Consultation, it'll go ahead as there's Not even a Discussionon this, nor the LCWRA changes.

  • Andi66
    Andi66 Online Community Member Posts: 905 Championing

    I feel very depressed, with the cuts and what's happening in the world.

  • Catherine21
    Catherine21 Posts: 5,191 Championing

    Your son will be ok with all his medical evidence and disabilities you can definitely prove he's not able to work

  • Robroy31
    Robroy31 Online Community Member Posts: 11 Listener

    Thank you Christine 21 . What I think about is who will he get when doing the assessment. Last time he had an assessment the assessor asked him to walk we have a wheelchair for my son that we got through a referral from pain clinic it was facing the assessor to the side of her desk she asked him to walk he took 2 steps said he wanted to sit down. On his assessment it stated that he walked to end of room which wasn't true because if he had carried on walking he would of had to climb on her desk to say he could walk at least 25yds . So a dwp decision maker can only go with what they saw written down they choose to go with the medical evidence thank goodness he got mobility ( high) rate.