Spinal cord injury — Scope | Disability forum
Please read our updated community house rules and community guidelines.

Spinal cord injury

Options
emilygreen4
emilygreen4 Community member Posts: 6 Connected
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi guys,

Wondering if anyone on here has a spinal cord injury due to birth.
I have been back and forth meeting different professions to solve the problem I have with my abrnomal gait I was referred to a Neurologist and then had an MRI scan. The mri on the Brian was clear but there was abnormality on my spinal cord. The neurologist a has described this as a scar like damage that has happened from birth. After doing a bit of research I have come across a few different websites describing the symptoms and although none of them stood out, I came across one website stating it is an injury that can be very similar to cerebal palsy cases which explains why it was mentioned.

If anyone has had this diagnosed could you give me a little bit of daily life information and what you do in order to support yourself I would be very greatful.

Emily 
· Share on FacebookShare on Twitter

Comments

  • steve51
    steve51 Community member Posts: 7,153 Disability Gamechanger
    Options
    Hi @emilygreen4

    A very very big welcome to you to website and online community.

    I had a Brain AMV from birth at the top of my Spinal Cord/Brain.

    We have got a very active online community where you will find a lot of members who may be able to help you further ???

    I have attached the link to the online community below for you.

    Please please come back to me if I can help you further with anything.

    http://community.scope.org.uk/
    · Share on FacebookShare on Twitter
  • steve51
    steve51 Community member Posts: 7,153 Disability Gamechanger
    Options
    Hi emilygreen4.

    I'm very very sorry that I put the link above as we are already here ???

    Please please let me know if I can help you in anyway ??

    Many many thanks.
    · Share on FacebookShare on Twitter
  • Topkitten
    Topkitten Community member Posts: 1,285 Pioneering
    Options
    Spinal cord injuries aren't understood very well. In fact anything relating to nerve damage suffers as it isn't understood very well even by specialists. I constantly run into issues with doctors about it as I know and understand it far better than they do but am dismissed because I am not qualified.

    I hope you find some help here.

    TK
    "I'm on the wrong side of heaven and the righteous side of hell" - from Wrong side of heaven by Five Finger Death Punch.
    · Share on FacebookShare on Twitter
  • Annalouise
    Annalouise Community member Posts: 3 Listener
    Options
    Hi Emily my son suffers from Spinal Avm from birth leaving hi son lower body affected but upper body unaffected is this anything like your injury? Louise 
    · Share on FacebookShare on Twitter

Brightness

Categories