How is your day going?

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  • Teigr
    Teigr Online Community Member Posts: 5,079 Championing

    Good afternoon from rainy Paris.

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,809 Championing

    It's not a good day

    Just been diagnosed the atrial fibrillation

    My pulse is dangerously high

    Come on outnof the blue

    I've got to take beta blocker s tk get heart rate down

    Need blood thinners, but have to wait for blood test results

    I've been referred to cardiology

    Also I went Dr's because of high pulse and numb feet and crooked toes

    I'm. Seeing the rheumatology on tues. He wil. Sort out the numbness.thinks it's linked to my lupus

    I. Have a fungal infection in my toes

    And severe osteoarthritis

    Need xrays and a referral to podiatry isnowsame day as rhemotology Tues 430 for feet

    12 20 for rhemotology

    On too if that I'm. Having severe hot flushes

    I've made it to the pharmacy

    Not sure I want beta blocker s

    I feel. Very upset and stressed

    She said it's nothing I've done. Af can come on suddenly to anyone

    Good job I do regular BP. Checks as my pulse is always 40 or 50

    Now it's 124

  • Santosha12
    Santosha12 Online Community Member Posts: 3,985 Championing

    Just thinking of you @Amberpearl , it's not surprising you feel upset and stressed, you've got an awful lot going on all at once.

    Sending hugs and, just to say, when I went on beta blockers 2.5 years ago they started to work pretty quickly (wasn't for AF but used alongside hypertensive medication to reduce blood pressure and arrhythmias/fast pulse which was very reassuring for me).

    Take good care and I hope tonight you rest and I'm glad you've not got too long to wait for some of your appts next Tuesday. Sending hugs and very warmest of wishes to you. Maybe cuddle up with your lovely cats tonight xx

  • Teigr
    Teigr Online Community Member Posts: 5,079 Championing

    Morning all.

    That's a lot to take in at once @Amberpearl,I hope your appointment goes well.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,758 Championing

    Sorry to hear this amberpearl sounds extremely difficult day

  • Rosie_Scope
    Rosie_Scope Posts: 8,211 Scope Online Community Coordinator

    Morning everyone, hope you're all well today.

    That's a lot to deal with @Amberpearl, no wonder you're feeling upset! Hopefully the cardiologists and other specialists can get you feeling more comfortable soon. Look after yourself 💛

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,809 Championing

    The nurse rang with my blood tests results

    My kidney function test normal

    Liver normal

    No to diebetes

    No to thyroid

    Chlorestral slightly raised but better than last time

    My heart enzyme test was raised

    I'm. Now in a panic

    Sge says possible raised due to fast pulse

    I. Took a beta blocker last night

    This morning my BP was 121 75 pulse 92

    Much better than yesterday it was 169 over 114 pulsev124

    I def have afib

    Waiting for the referral to cardiology need an scan

    Going rheumatology Tues at the hospital 12 20 and foot clinic is near my home at 430

    Im.in a real. State

    I feel. Upset and stressed

    I'm not keen on so many meds

    The nurse sent another prescription to the pharmacy for blood thinners

    I'm. To collect it today and start tomorrow

    I'm. Feeling very scared

  • Rosie_Scope
    Rosie_Scope Posts: 8,211 Scope Online Community Coordinator

    Hope you're okay @Amberpearl, it's understandable that you're feeling scared and upset by it all. Take each day as it comes and try to relax if you can manage it. I know that's probably easier said than done with all that's going on but as someone suggested above, maybe lots more cat cuddles are in order 💛

    Fingers crossed that you're not waiting too long for the cardiology referral to come through.

  • Santosha12
    Santosha12 Online Community Member Posts: 3,985 Championing

    Thinking of you @Amberpearl, I'm glad you've got your bloods results but sorry you're feeling stressed and upset/scared.

    As a cardiology patient myself in 2022-2023 (and previously worked their, only briefly/Bank work, c 12 times over the last decade), I found their knowledge and skill extremely reassuring but that doesn't really stop the fear completely when it's our heart.

    It's good that your BP and pulse have normalised and very good that your other blood results are normal (kidneys, liver, thyroid and diabetic test). I hope your scan gets arranged soon and that you feel things are more stable once you start on your blood thinners too.

    Take good care 🫂.

  • Marydoll5
    Marydoll5 Online Community Member, Scope Member Posts: 678 Championing

    HHi Everyone

    I've not been on in a long time but wanted to wish @Lou67 all the best for your sons wedding. I think about all my scope friends and have just been too unwell to engage. Hope you are all well and one day I'll get back on properly x

  • Rosie_Scope
    Rosie_Scope Posts: 8,211 Scope Online Community Coordinator

    Thinking of you @Marydoll5, hope you're feeling more like yourself soon. Would be lovely to see you back whenever you're feeling ready 💛

  • Roughyed1485
    Roughyed1485 Online Community Member Posts: 73 Empowering

    Hi everyone, it’s a very dark and lonely time at the moment. I’ve decided to reach out to my sister after thinking for a while on something. I inherited some precious items belonging to our grandparents, As I’ve not seen my family for nearly ten years, no longer have any friends in my life and have now become a recluse. I’ve decided it’s time for me to atone for many many poor choices and inability to physically control my emotions and behaviour over the last 42 years. I’ve decided to send my grandparents items back to my parents so as they can be handed down to my Sisters two girls and remain in the family where they belong. I don’t deserve to call them my nieces and it wouldn’t be right for me to do so. It’s one last goodbye thing I can do in life, after leaving many scars, a lot of hurt and many people being ashamed of me in both Oldham and Chesterfield. I’m just going to live out, however many years I have left in isolation and have already started paying for a non attendance cremation which will be active in two years. I’ve said my goodbye to my Sister now and also said goodbye to my family via the message. I’m going to do the same with my ex wife and tell her that I’ll apply for a conditional order for the divorce in September and finally a final order. I’ve made my bed and I’ll have to lay in it for however many years I have left until the day I’m nothing but a pile of scattered ashes in a nameless crem in Derby. This is also going to be my final time speaking on here to, I wish each and everyone all the best with there lives, thank you for advice and support and time on here. Could admin please delete my profile please as once I sign off here, it will become dormant.

  • Schildpad
    Schildpad Online Community Member Posts: 1,011 Empowering
    edited June 2025

    Ok. So I got backdated money from esa. A handsome amount. I need to read that letter that hopefully will come this week or next week. I need some clearance here because apparently he said esa will go up. But I am worry. He mentioned 82 quid but can not be per week. I guess that will be per month.

    Normally I am not a lucky person. I am not a lucky person end off. Also need to know how much if so the esa will go up. As I said I thought it was a high amount. He mentioned it will go up. I will keep an eye..

    Weather been miserable and it does not help mentally.. anyway take care. And worry with the move to UC when it happens the amount will be well below what I am getting. I don't want to be moved to UC but I have no choice... Maybe a good lottery win will come... Bye for now.

  • Teigr
    Teigr Online Community Member Posts: 5,079 Championing

    Morning all.

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,809 Championing

    Morning all

    It's 11 degrees cold and raining

    I feel very stressed

    Since my af diagnosis

    Constantly worried I can drop dead at any minute

    I'm so lonely

  • Santosha12
    Santosha12 Online Community Member Posts: 3,985 Championing

    Dear @Amberpearl,

    I'm sorry you feel so lonely and so stressed but AF will not cause you to drop down at any moment.

    Please, I urge you to ring the AF Association today; they're on 01789 867502 (think they're in Stratford-upon-Avon). That's the Helpline number for AF patients. They're open from 0800hrs to 1730hrs Monday to Friday.

    They will let you talk through your fears and concerns and they will help you.

    They're closed at weekends but if you rang at weekend and left a voicemail with your name and number then someone would ring you back at weekend.

    Tracey is the Patient Services Manager there who you'd probably speak to. I've rang to double check they're open today - they are and Tracey is on duty but is in a meeting from 1045 to 1230, so you'd get her before or after 1230 if you choose to ring.

    I hope you do ring @Amberpearl; your stress level may be greatly reduced if you speak to someone who can really help you understand it better. Anyway, take good care and I'll just leave that information with you in case you want to use it. Very warmest of wishes ✨️ 🫂.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,758 Championing

    Oh I'm so sorry your going through this it's so hard dealing with everything I say thankgod for our fur babies they keep us going much love

  • Amberpearl
    Amberpearl Online Community Member Posts: 3,809 Championing

    Really

    I ring them after 12 30

    I have to meds from pharmacy

    It's not helping that I have an online friend in canada never met but she had very strong veiws on meds and Dr's Sge won't take any meds

    Belives in homeopathic treatment only

    The nurse told me they don't work complimentary therapies

    This so cold freind says all the medical professionals including vets are out to kill us and I cannot take the Dr's meds or I will die

    I'm. Very stressed and so scared I will die in my sleep from heart attack like mum

  • Rosie_Scope
    Rosie_Scope Posts: 8,211 Scope Online Community Coordinator

    Morning everyone 😊

    Sorry to hear you're thinking of leaving @Roughyed1485, I've popped you an email. I know it's been a really tough time for you lately so I hope you're doing as well as possible.

    That sounds promising @Schildpad! Fingers crossed that your letter comes through soon so you can get some clarity on how things will change.

    Sending you lots of love @Amberpearl. Santosha's kind response about the helpline looks really worth looking into. I'm sure they will be really helpful and might be able to put your mind at ease.

    My dad lived with AF for quite a few months on all the medications. At times it wasn't easy and the abnormal rhythm wore him out a lot, but after receiving treatment he's now back in a normal rhythm and feeling like himself again. It's pretty scary to face it all, but the cardiologists will hopefully set up a treatment plan for you and we're all here to support you in the meantime 💛

  • Schildpad
    Schildpad Online Community Member Posts: 1,011 Empowering

    I read a message from the chat that once you get money backdated. They will be asking for bank statements a year later. It came.a lot of money together . So I have to splash the money in a years time.

    Bad times could happen and that my money is very welcome. .and it is their fault. Anyway I will see what happen.

    But I live in constant anxiety. This should make me feel better but I am feeling quite the opposite.