How is your day going?

@BroughAndy

Hi thank you.

Yes fibromyalgia is a fluctuating condition and I am in a flare up today but the sun is shining here and I'm going out later with some friends to a little fishing village by the sea, not far from where we live.

It's not a good day

Just been diagnosed the atrial fibrillation

My pulse is dangerously high

Come on outnof the blue

I've got to take beta blocker s tk get heart rate down

Need blood thinners, but have to wait for blood test results

I've been referred to cardiology

Also I went Dr's because of high pulse and numb feet and crooked toes

I'm. Seeing the rheumatology on tues. He wil. Sort out the numbness.thinks it's linked to my lupus

I. Have a fungal infection in my toes

And severe osteoarthritis

Need xrays and a referral to podiatry isnowsame day as rhemotology Tues 430 for feet

12 20 for rhemotology

On too if that I'm. Having severe hot flushes

I've made it to the pharmacy

Not sure I want beta blocker s

I feel. Very upset and stressed

She said it's nothing I've done. Af can come on suddenly to anyone

Good job I do regular BP. Checks as my pulse is always 40 or 50

Now it's 124

The nurse rang with my blood tests results

My kidney function test normal

Liver normal

No to diebetes

No to thyroid

Chlorestral slightly raised but better than last time

My heart enzyme test was raised

I'm. Now in a panic

Sge says possible raised due to fast pulse

I. Took a beta blocker last night

This morning my BP was 121 75 pulse 92

Much better than yesterday it was 169 over 114 pulsev124

I def have afib

Waiting for the referral to cardiology need an scan

Going rheumatology Tues at the hospital 12 20 and foot clinic is near my home at 430

Im.in a real. State

I feel. Upset and stressed

I'm not keen on so many meds

The nurse sent another prescription to the pharmacy for blood thinners

I'm. To collect it today and start tomorrow

I'm. Feeling very scared

Thinking of you @Amberpearl, I'm glad you've got your bloods results but sorry you're feeling stressed and upset/scared.

As a cardiology patient myself in 2022-2023 (and previously worked their, only briefly/Bank work, c 12 times over the last decade), I found their knowledge and skill extremely reassuring but that doesn't really stop the fear completely when it's our heart.

It's good that your BP and pulse have normalised and very good that your other blood results are normal (kidneys, liver, thyroid and diabetic test). I hope your scan gets arranged soon and that you feel things are more stable once you start on your blood thinners too.

Take good care 🫂.

Ok. So I got backdated money from esa. A handsome amount. I need to read that letter that hopefully will come this week or next week. I need some clearance here because apparently he said esa will go up. But I am worry. He mentioned 82 quid but can not be per week. I guess that will be per month.

Normally I am not a lucky person. I am not a lucky person end off. Also need to know how much if so the esa will go up. As I said I thought it was a high amount. He mentioned it will go up. I will keep an eye..

Weather been miserable and it does not help mentally.. anyway take care. And worry with the move to UC when it happens the amount will be well below what I am getting. I don't want to be moved to UC but I have no choice... Maybe a good lottery win will come... Bye for now.

Morning all

It's 11 degrees cold and raining

I feel very stressed

Since my af diagnosis

Constantly worried I can drop dead at any minute

I'm so lonely

Dear @Amberpearl,

I'm sorry you feel so lonely and so stressed but AF will not cause you to drop down at any moment.

Please, I urge you to ring the AF Association today; they're on 01789 867502 (think they're in Stratford-upon-Avon). That's the Helpline number for AF patients. They're open from 0800hrs to 1730hrs Monday to Friday.

They will let you talk through your fears and concerns and they will help you.

They're closed at weekends but if you rang at weekend and left a voicemail with your name and number then someone would ring you back at weekend.

Tracey is the Patient Services Manager there who you'd probably speak to. I've rang to double check they're open today - they are and Tracey is on duty but is in a meeting from 1045 to 1230, so you'd get her before or after 1230 if you choose to ring.

I hope you do ring @Amberpearl; your stress level may be greatly reduced if you speak to someone who can really help you understand it better. Anyway, take good care and I'll just leave that information with you in case you want to use it. Very warmest of wishes ✨️ 🫂.