Hi, my name is Francisx! I am a middle age man with severe Osteoarthritis...

Francisx
Francisx Community Member Posts: 1 Listener
edited July 2025 in Families and carers

I am a middle age man with severe Osteoarthritis.

I am also a carer for my mother with Alzheimer, epilepsy and now lung cáncer.

I am increasingly struggling in my daily life, physically and mentally with my condition. Also this is affecting my ability to care for my mum, who needs 24/7 care. I am worried that I won't be able to care for her properly, as my condition increasingly degenerates.

I've had some sporadic non specialised support, like standard carers for a few hours, but I have not found continuous specialised support that would improve our situation, so I am very worried about the escalating difficulties.

If anyone has had a good experience with any particular group or charity for general and specialised support, please let me know.

Thank you in advance for any advice.

Francisx

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Comments

  • Rosie_Scope
    Rosie_Scope Posts: 9,797 Online Community Team

    Hi @Francisx, I'm sorry you haven't had any responses to this yet. How are you getting on?

    Did you manage to find any specialised support for you and your mother?

    Hope everything is going okay.

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 481 Pioneering

    Hi @Francisx

    Welcome to the community.

    My mum has a dementia diagnosis. My Dad is her primary carer, and my sister and I are providing extra support. But the emotional toil is exhausting. I can only imagine how tough life must be doing it alone, alongside other medical conditions.

    I'm wondering if you have contacted Dementia UK. They have Admiral Nurses who you can speak with for practical and emotional support.

    As Bluebell21 has said, please remember to take care of yourself.

    Best wishes.

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