Myotonic Dystrophy

MD1955
MD1955 Online Community Member Posts: 33 Contributor
in Start here and say hello!

Hi…my name’s Steve. ****. Retired. I live in Surrey. I have Myotonic Dystrophy. My brother died aged 62 from same MD. I’m pretty upbeat and try to do most things bearing in mind I can only walk about 25m with walking stick. I use Rollator and e wheelchair. Gave up driving year ago before I hit someone or thing. I love Art, used to paint, cinema, Liverpool FC being from Liverpool. I like to eat in nice restaurants and go to the theatre and art galleries when I get taken. I love bright colours in clothes. Watching ‘serious’ TV’ none of your celebrity or influencer nonsense. Don’t do Facebook, or any other social media stuff. I’m interested in all the stuff Labour are trying to introduce….and have no time for Tories or Reform…..which they will get right eventually. No time for the protesters outside migrant ‘hotels’ but lots for people who are generally poor or kids raised in poverty. No time either for smokers.

Tagged:

Comments

  • Holly_Scope
    Holly_Scope Posts: 3,614 Scope Online Community Coordinator

    Hi @MD1955 Thank you for sharing about yourself! I've tagged you in a welcome post which has a few links to categories that are great places to begin engaging with the community. We are a friendly and supportive group and often discuss current affairs such as the welfare reforms you've mentioned. 🙂

  • Ranald
    Ranald Online Community Member Posts: 2,928 Championing
    https://forum.scope.org.uk/discussion/137385/myotonic-dystrophy

    Hi MD1955, ex smokers here, so i hope you can have time for me 😉

  • MD1955
    MD1955 Online Community Member Posts: 33 Contributor

    Hi Yep….my paternal grandfather was a 60 a day man…then he gave up at about 60 as most people told him he never would. Replaced the habit with huge bags of misshaped sweets which he offered to everyone. Gave him 9 more years.

  • Ranald
    Ranald Online Community Member Posts: 2,928 Championing

    My maternal grandfather gave up his pipe at 77, and he got another decade.

    All my neighbours smoke, so it isn't easy to stay smoke free. Oh yes, I remember, the £18 for 20 Regal is a good incentive!

    My neighbour died at 96, still an unrepentant smoker. It's the luck of the draw is it not?

    I don't know anything about your fair city, but I remember big Duncan Ferguson before he moved to Goodison Park. Are there parts of the city that lean towards Everton more than Liverpool? My team has a mixed support throughout the city ( Dundee and Dundee United).

  • MD1955
    MD1955 Online Community Member Posts: 33 Contributor

    Hi Ranald…not really been to Dundee either, drove around it once on way from Edinburgh up further north. My wife lived in Dumfriesshire for 4 years many years ago.

    Everton preceded Liverpool by a few years and used to be called St Dominic’s after RC church in corner of Goodison Park. LFC was formed by a split away a few years later. Their grounds were less than a mile apart with park in between….Stanley Park. Supporters are not associated with religion anymore & have support from all parts of Liverpool & worldwide now. Now EFC have moved to new ground in the Docks on the river. EFC Women’s team to use GP.

  • Ranald
    Ranald Online Community Member Posts: 2,928 Championing
    https://forum.scope.org.uk/discussion/comment/1055836#Comment_1055836

    Glasgow is different to the rest of Scotland, no religion or suchlike here.

    An uncle of my dad, he lived in Bootle, and one of his sons ( Michael Carr) was briefly MP for Bootle in 1990. He died suddenly aged 43.

    I don't live in Dundee these days, but it has undergone massive change in recent years. The waterfront is very much improved.

  • MD1955
    MD1955 Online Community Member Posts: 33 Contributor

    Glasgow is a great place, been a few times over the years. Mainly to see the Art School and Rennie Macintosh house and cafe/stuff. We have a few books on him and a mirror in his style over the fireplace. My turf in Liverpool was in the south part of the city where the Beatles came from - Woolton, Speke and Wavertree. …near Strawberry Fields and I went to school near Penny Lane with all the references in the song, the barbers shop, the Bank and the bus terminal etc. Even saw the Beatles live in 1963.

  • Ranald
    Ranald Online Community Member Posts: 2,928 Championing
    edited August 5

    I am not massively interested in Merseybeat, being only 50 years old may play a part in that.

    My mum saw The Beatles in 1963 too, at the Caird Hall in Dundee. If you were born in 1955, you must have been just a wee bairn!

    I would be more interested in their tribute act from Manchester, lol.

    We had better not fill the forum with idle chit chat, or we will be on the naughty step! Once you have posted over 50 times (Contributor rank), you will have the option to send private messages to other members.

Categories