Accessing botox

wafflecomet
wafflecomet Online Community Member Posts: 1 Listener
edited August 15 in Cerebral Palsy Network

Hi!

I have mild diplegic cerebral palsy. I had botox injections once as a child (now in my late 20s) but since then I have had no treatment/physio/consults etc so don't really know where to start with accessing support or treatment. I've been reading about Botox again and would like to explore this option and/or physio. I was hoping for some guidance on how to start getting some support or advice. Where do I even turn? Who do I talk to? Feeling very isolated in terms of my disability since becoming an adult!!

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  • Albus_Scope
    Albus_Scope Posts: 10,612 Scope Online Community Coordinator

    Hey there @wafflecomet and a (very) warm welcome to the community. I'm sorry to hear you've been feeling alone, I'm hoping the community can be a great place for both support and friendship. We also have the CP network which you can join. 😊

    I'd suggest speaking to your GP as the first step here for the botox. But maybe our amazing CP team (seriously, they're all lovely) have some better suggestions? @Richard_Scope @SaraC_Scope @Lucy_Scope ?

  • Richard_Scope
    Richard_Scope Posts: 3,792 Cerebral Palsy Network

    Hi @wafflecomet

    Happy to meet you!

    Currently, there's not a smooth transition between child and adult services for people like us who live with CP. This is something we are working hard to change.

    For Botox and Physiotherapy, you will first need to make an appointment with your GP. If I were you, I would book an extended appointment so that you do not feel rushed. Your GP should be aware of the NICE Guidance for Adults with Cerebral Palsy. If not, please show them the link.

    You are not alone. Happy to chat and answer any questions that you may have.

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 302 Empowering

    @wafflecomet

    Welcome to the community. I'm Sara one of the CP Specialists. I echo everything Richard has mentioned.

    It can feel isolating as you understand more about how cerebral palsy affects you as an adult, but please know you are not alone.

    Our team are here to offer support and guidance and answer any questions you might have. We all have lived experience of CP.

    We also have a great community on our CP Network which you are welcome to join. We host monthly meetings on the second Wednesday of each month from 6pm-7pm.

    Take care.

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