How much pain is acceptable?

Katie21
Katie21 Online Community Member Posts: 5 Contributor
edited November 8 in Talk about your impairment

A few months ago I saw a neurophysio and an OT they didn’t examine me (not once) we discussed my pain level and their response was…

“Well you need to accept that you have Cerebral Palsy and at 32 you’re going to be in pain”

A few weeks later I was with the OT, again the subject of pain came up. My pain was that bad I was sweating, their response was

“Are you doing your physio properly?”

Barring in mind I am usually very active , I have the attitude of do it properly or don’t do it at all.

Is sweating due to pain acceptable?

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Comments

  • Chris75_
    Chris75_ Online Community Member Posts: 4,075 Championing

    I've been told that neuromuscular pain is hard to treat, and pretty much I just have to get on with it. I take a small dose of Pregabablin only, and am thinking about stopping it, due to weight gain and swelling in the lower legs.

  • [Deleted User]
    [Deleted User] Posts: 1,174 Championing
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  • Katie21
    Katie21 Online Community Member Posts: 5 Contributor

    I guess my concern is that when being in so much pain you can’t function and are sweating, is this okay ?
    it turns out (and maybe I should have said before) it was something that needed surgery pretty quickly but was missed because they assumed the pain was due to CP and didn’t double check. Fortunately my gp took me seriously

  • [Deleted User]
    [Deleted User] Posts: 1,174 Championing
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  • Chris75_
    Chris75_ Online Community Member Posts: 4,075 Championing

    Mr Mountbatten doesn't sweat, apparently. 🤔

  • Wibbles
    Wibbles Online Community Member Posts: 3,027 Championing

    How, exactly are we supposed to rate pain ?

    I am in constant pain from my shoulders (arthritis and bicep tendonitis) which I rate as level 9 - ramping up to 20 when my shoulders lock and I move my arms even a tiny amount in any direction.. These are out of 10

    Some people can take pain - I can't

  • [Deleted User]
    [Deleted User] Posts: 1,174 Championing
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  • Katie21
    Katie21 Online Community Member Posts: 5 Contributor
    https://forum.scope.org.uk/discussion/comment/1081845#Comment_1081845
    https://forum.scope.org.uk/discussion/comment/1081845#Comment_1081845

    think I’d argue you can tolerate pain and you do amazing tolerating so much of it.

    I guess it’s the British stiff upper lip, and people being too exhausted to care, even if they are a medical professional

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