HELP ME | Cerebral palsy

Alexxxis
Alexxxis Online Community Member Posts: 9 Listener
in Families and carers

Greetings ! I have cerebral palsy and I am very tired of living.
I have depression and apathy.....
Are there any moms who also have children with cerebral palsy.
I wonder if you could give me moral support.
It's very difficult when you don't have someone to turn to with questions.

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Comments

  • Richard_Scope
    Richard_Scope Posts: 3,940 Cerebral Palsy Network
    edited December 2025

    Hi @Alexxxis

    It's good to meet you. I live with cerebral palsy too. I'm also a parent. Have you reached out to your GP to discuss how you are feeling?

    I will happily try to answer any questions that you may have.

  • Alexxxis
    Alexxxis Online Community Member Posts: 9 Listener
    https://forum.scope.org.uk/discussion/comment/1087469#Comment_1087469

    Hi! I'm 23, I don't have any friends.

  • Alexxxis
    Alexxxis Online Community Member Posts: 9 Listener
    https://forum.scope.org.uk/discussion/comment/1087481#Comment_1087481

    Hi @Richard_Scope

    Nice to meet you too!

    I haven't seen a doctor.

    I'm from a post-Soviet country.

    Here such delicate things are treated with disdain.

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 411 Pioneering

    Hi @Alexxxis

    I'm Sara and have right sided CP and epilepsy. It's lovely to have you on the community.

    These disabilities can take it's toll and there are days I feel exhausted, but on the good days I try to find moments that make me happy or just smile. This can be spending time with family, watching Christmas movies or comedy on TV.

    I'm a mum to a grown up son, age 21. Parenting with a disability was tough, but I found a way. Once my son understood how I did things, he helped me and it helped him to learn as well.

    Our CP community are here to support you. Please get in touch if you need to talk.

    Take care.

  • Alexxxis
    Alexxxis Online Community Member Posts: 9 Listener

    Hi! @SaraC_Scope

    Thank You!

  • Alexxxis
    Alexxxis Online Community Member Posts: 9 Listener

    Hello! Today I feel a kind of emptiness again..... Honestly, I'm so tired.

  • Rachel_Scope
    Rachel_Scope Posts: 3,368 Scope Online Community Coordinator

    So sorry you're feeling an emptiness today. Do you do any self-care? Maybe listen to music or watch your favourite film? I'm burning a red raspberry scented candle today that's helping me feel calm.

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 411 Pioneering
    edited December 2025

    Hi @Alexxxis

    How are you today?

    It's not unusual for people with CP to have periods of depression and anxiety. When I experience low moods, I sit with the feelings and acknowledge them for what they are. I have found writing in a personal journal a good outlet. I have a very understanding family who I can talk with. Do you have anyone you can turn to?

    I find listening to music shifts my thoughts and puts me in the moment. As I mentioned before, I love a cheesy Christmas movie at this time of year.

    If you really are struggling with your mental health, please get in touch with your GP.

  • Alexxxis
    Alexxxis Online Community Member Posts: 9 Listener

    Hey, everybody! How are you?

    I still can't get over the emptiness.

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 411 Pioneering
    edited April 7

    Hi @Alexxxis

    I'm sorry to hear you are still struggling. Did you speak to your GP after Christmas? I'm wondering where in the UK you live, as we have face to face meetings throughout the year.

    There are some great support networks in the cerebral palsy community. Scope have a

    Cerebral Palsy (CP) Network | Disability charity Scope UK which you are welcome to join. We host monthly online meetings and it's a space to meet likeminded people. You also get access to a monthly newsletter and regular updates in the cerebral palsy community.

    There is also a Facebook page called Cerebral Palsy Adult Advice UK | Facebook to connect with others who have cerebral palsy. It's an active community and the members support one another.

    This Facebook page have another group for ladies with cerebral palsy. It's a safe space to ask questions and connect with ladies who understand what you are feeling and experiencing.

    Ladies With Cerebral Palsy UK | Facebook

    Please also contact me @Richard_Scope or @Lucy_Scope if you just need to talk. You are not alone.

  • Alexxxis
    Alexxxis Online Community Member Posts: 9 Listener
    https://forum.scope.org.uk/discussion/comment/1115378#Comment_1115378

    Hello, Thank you for your support I am from Kazakhstan.

    I really want support, communication.

    Loneliness and thoughts in my head just frustrate me

    Can you contact me via Telegram?

  • Rachel_Scope
    Rachel_Scope Posts: 3,368 Scope Online Community Coordinator

    Hi @Alexxxis, unfortunately we can't contact you outside of the community. Are you able to keep replying here?

  • Alexxxis
    Alexxxis Online Community Member Posts: 9 Listener

    Hello! Honestly, it's hard for me to answer here. I often forget to log in here and miss notifications

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