Cerebral Palsy Is Lifelong — Services Must Be Too

Richard_Scope
Richard_Scope Posts: 3,928 Cerebral Palsy Network
edited March 20 in Cerebral Palsy Network

Cerebral palsy does not disappear at 18.

Yet adult services for people with CP are often fragmented, inconsistent, or difficult to access.

Adults with CP are:

• navigating employment and career progression

• managing fatigue, pain and secondary conditions

• experiencing ageing with a lifelong neurological condition

• advocating for services that can feel designed primarily around childhood

Despite the NICE Guidelines and the findings of the All-Party Parliamentary Group for Adults with CP, funded by Scope. We are increasingly hearing from adults who want lifelong, coordinated support — not cliff edges.

This Cerebral Palsy Awareness Month, let’s widen the lens.

If CP is lifelong, our commitment to inclusion and service design must be lifelong too.

#CerebralPalsyAwarenessMonth#AdultsWithCP#HealthInequalities#Scope

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Comments

  • trouble5316
    trouble5316 Online Community Member Posts: 146 Contributor

    I had mine since birth im nearly a decade off retirement. I only got diagnosed in my twenties