Is Scope Disability Friendly anymore?
Comments
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Me thinks ya all need a bit of heliotherapy
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I think we need to remember that all members express themselves in different ways. No judgement should be made as to how they do this.
As a disability forum we should accept different reasons for members writing the way they do. It does not make their contributions any less valued.
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Sometimes it is something as simple as leaving certain words out that change the tone of a post.
Like " This is really well put, and it reflects what many members have been trying to express" implying they did not get it quite right.
Whereas " This is really well put, and it reflects what many members have been expressing" is more inclusive.
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We all have different communication styles, or put another way, we have different communication limitations, and different communication alternatives to work around our lifelong communication limitations.
Currently here in the UK these issues are not explained in great detail by the so called medical, and health professionals who should be trained and qualified to explain these issues, and explain the types of support and understanding some may require.
I have Auditory Processing Disorder the listening disability which is the underlying cognitive cause of my dyslexia symptom, and my problem of remembering the right words to use when trying to explain a topic (there are many other issues as well). Auditory Processing Disorder can be one of the multiple issues which can combine as part of an individuals Autism. I have a a Facebook Auditory Processing Disorder support group and one of the members is autistic and sometimes her comments are considered by other members as being rude, but it is her way of communicating her feelings.
So we need to understand the different communication options each individual may have and their possible communication limitations.
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I have been is a similar situation most of my life, until I found out about Auditory Processing Disorder, which is the cause of both my dyslexia and my specific language impairment, and in my 20s I was diagnosed as having a Personality Disorder, which is really a symptom of my lifelong Auditory Processing Disorder. Back in the 1970s UK medical professionals did not know about Auditory Processing Disorder, which international research and technology has explained over the last few decades.
I did not know until my early 50s that i had become a visual spatial learner from birth to work around my lifelong auditory limitations. I think in pictures, diagrams, charts, and practical demonstrations, and I have real problems with verbal instructions, which I tend to fail to understand.
When it come to using text I have an computer word processer which I use to type and spell check my no text based information. so that for me each new sentence start on a new line, and I also alternate the font colour between green and blue between the sentences. I find this helps me read research papers, as i can also put new to me words and terminology in a red font colour so that i an look the word up and then type in an online explanation.
Most of my local community have no understanding of my lifelong communication limitations and many can become rude and nasty, which is why I tend to be house bound the avoid any disability discrimination.
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Hi Catherine21
There are three possible causes of the dyslexia symptom :- Auditory Processing Disorder, and or Visual Processing Disorder, and or Attention Deficit Disorder.
The initial key research papers are :-
Cognitive subtypes of dyslexia are characterized by distinct patterns of grey matter volume 2013
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4147248/
And the key research papers for me were
Unstable Representation of Sound: A Biological Marker of Dyslexia 2013
https://www.jneurosci.org/content/33/8/3500.full
and
For Reading Development, Auditory Processing Is Fundamental
and below is my graphic
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I expect I will get shot down in flames but what has these past few comments to do with the thread title people complain about others hijacking threads then do the same
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Thanks for treating each other with respect here, that's lovely to see. This seems to have come from chatting about communication differences which is still relevant to what was being discussed in some ways. It's great to see you sharing experiences with each other and copying over some information that might help others understand.
That said, I think everyone's recognised we are at risk of getting a little off topic now, so it would be good to get back to the main theme of this discussion again from now on.
Thanks for all that you've shared so far, it's been good to read through everyone's thoughts and experiences.
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I rarely come here anymore, As many know this is my third time here over 4 years or so.
Other than my rapidly significantly declining health the other main reason is what some others have posted here already. I
in my opinion and it is just my opinion (although a few past searches do verify it) a tiny handful seem to pounce on another tiny handful consistently in what appears as intentional aims of getting their threads closed by turning up in them no matter what the subject and posting a sarcastic or pointless response or an emoji, that will almost certainly set off a reaction either by the thread starter, the admin or both.
It can't be a coincidence it's certainly not paranoia on their part either because none of these remarks are aimed at me I simply observe them regularly and can definitely see what they are saying.
It's also a good point how written word can at times come across wrong, but that only applies without a consistent pattern.
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I always feel disappointed when a thread that I've been participating in gets closed as I'd like to continue to post in it, but I understand why it needs to be done.
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Not shocked at all people believe Scope is toxic. The entire internet in general is toxic thanks to the far right, tech bros, bots etc.
To build a real community, in person support is the only way. People are less likely to be bigoted **** if they have to tell it to your face, and not behind a screen.
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On a Disability Forum we have as we should members with Physical and Mental Health disabilities.
All members do not think the same and some are not able to see the impact their words might have. They may have good intentions and it is another members interpretation that is an issue.
It is this that makes having House Rules set in stone impossible in my opinion.
I accept that good intentions are not always enough, therefore the mods have to decide was the members actually capable of seeing the impact their words would have on another.
I know of several members who feel others are actually waiting for them to post so they can put them down and this can sometimes be done in a preaching manner.
We should be promoting understanding and empathy on the forum.
Where every member feels valued.
All members are the same irrespective of their rank or length of time they have been on the forum.
Ranks do not make any member more important than another. Instead they help committed and active members of on line Community earn abilities such as the ability to edit their own posts. (Using the Community)
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Having a different opinion isn’t the problem, it’s how that opinion is put across that makes the difference.
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i think the mods are over sensitive not under
and we dont need ai telling us the rules need to be clearer rules are dont be a jerk how much more do you need
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The difference between working in a work environment with safety rules and rules on a community forum lies in the context of safety measures and regulations.
In a work place safety rules are established by legislation (like the Health and Safety Work Act) to protect employees and ensure a safe working environment.
The rules cover various aspects, including risk assessments, equipment safety and emergency protocols.
In contrast a community forum typically operates under different rules and regulations that may not be as stringent as those in a workplace.
In summary, work place safety rules are designed to create a secure environment, while community forum rules may focus more on community guidelines and behaviour rather than strict safety rules.
I am unable to agree that many members work in Professional roles or that members have to write to a certain standard.
Members write to their ability which should never be looked down on. Nor should members feel they cannot contribute because they have less education or their health condition might make it impossible to achieve this high standard.
Intent must always be taken into account as some members are unable to understand how what they write might affect another person.
One rule does not fit all.
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Who is being a "jerk" ?
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didnt say anywas is i sai the rules say dont be
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people that speak on behalf of the vulnerable dont have a clue what its like to be vulnerable and make assumptions about what we do or dont need or want
maybe people need to stop speaking for us and listen to us instead,
4
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