Stressful PIP interview

Lucymariah
Lucymariah Online Community Member Posts: 1 Listener
edited March 28 in PIP, DLA, ADP & AA

It causees so much stress when you have to go for an interview and they twist what you say.And they aren't a medical profession. If you send them enough evidence from professionals then that should be enought. These people dont understand.

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  • Rosie_Scope
    Rosie_Scope Posts: 8,128 Scope Online Community Coordinator

    Welcome to the community @Lucymariah. The PIP application process can be really upsetting. I know you won't be alone in having a bad experience with your interview, many of our members will know what it's like to feel you weren't listened to at all. It can be a really disheartening system to tackle.

    Has this happened to you recently? If you're thinking of appealing a result, you can often get some useful advice from local benefits advisers. Turn2Us have a tool to search for local help if that's something you'd like to look into: Turn2Us Advice Finder

  • luvpink
    luvpink Online Community Member Posts: 3,928 Championing

    @Lucymariah

    Welcome to the community.

    The assessors are trained disability analysts.

    Some of them are also qualified medical professionals.

    pip isn't necessarily about medical evidence. Its about how your disability affects you as an individual and whether you can prove that you meet the criteria for an award.

  • dolfrog
    dolfrog Posts: 597 Trailblazing

    Hi luvpink

    From my experience the so called disability advisors are ignorant incompetents.

    I was told to move from DLD to PIPs in 2018 initially my application for PIPs failed the Department of Work and Pensions denied that my disability existed,

    In 2019 at an Appeal Court hearing the so called disability advisor again denied the existence of my disability, and my appeal failed. I told the Judge that I have multiple medical research papers that define and explain my lifelong disability. he told me that there would be another Tribunal Appeal and that I would be sent an envelope to send 6 research papers to my next appeal.

    I received the envelop a few months later, and i sent the 6 what i considered key research papers that explained my Auditory Processing Disorder (APD) including a few research papers from the Medical Research Councils APD research program run at Nottingham University 2004-2009. Due to Covid I was told that my appeal would be held online, and I sent a reply with links to what I considered to be important recent research papers. A few weeks later they sent me a copy of one of the new 100 page research papers.

    it was a Zoom Appeal Meeting. and i told the Judge that I have the Sound turned off due to my APD, and that we could type in the ChatBox. he told me that I had won the Appeal, and that i would get a back payment of my now PIPs during this Zoom meeting only the Judge and I communicated. The so called Doctor just sat there and never moved, and the so called Disability Advisor just stood up and then wondered about ignoring my Chat with the Judge.

    So we have to educate these incompetents using international medical research to explain our lifelong disabilities.

  • luvpink
    luvpink Online Community Member Posts: 3,928 Championing

    @dolfrog

    Hi

    I am not disputing anyones personal experiences.

    The fact is the assessors are trained disability analysts, some are medically trained and individuals will no doubt have difference of opinion regarding their level of competence.

    pip as I mentioned to @Lucymariah isn't about medical diagnosis but that having been said I have always been asked by assessors whether I have a proven medical condition to which I reply "yes I submitted a letter proving that" but I have rarely sent any other form of medical evidence because I complete the forms about how my disability affects in great detail and attaching extra sheets without having to and if they want more, I tick giving them permission to contact my doctors.

  • dolfrog
    dolfrog Posts: 597 Trailblazing

    Hi luvpink

    Part of the problem is that most so called assessors are not trained regarding most medical disabilities, and all of the possible symptoms of each medical condition.

    I was the first adult in the UK to be clinically diagnosed as having Auditory Processing Disorder in 2003 at Sheffield University to help the UK Medical Research Council get government funding for a 5 year research program 2004-2009 run at Nottingham University by Prof. David Moore who came to Hemel Hempstead in 2002 to help me set up the required support organisation, i set up and helped run APDUK 2002-2014.

    The Temporal type of APD is the main underlying cognitive cause of two important symptoms Specific Language Language Impairment, and Developmental Dyslexia. the key assessment test is the Random Gap Detection Test which attempts to measure the size of gap between the sounds the ears hear, the brain is able to process and identify. When i did the test in 2003 it did not include a gap between sounds large enough for me to identify, which explained my problems with rapid speech which to me is one continuous noise, and it explained why i am cognitively not able to use phonics.

    i was made redundant in 2004 when Virgin closed our local CD shop, and a few years later I was asked by the local JobCentre manager to explain my lifelong disability, how it affects me and how it affects in the work place. I provided a typed doc explaining these three issues regarding my lifelong Auditory Processing Disorder. 2 weeks later the manager of the JobCentre told me that I was unemployable, and should stop claiming ESA, and start to claim DLA.

    Back in 2019 a member of Scope who had previously worked in the NHS added a comment to a Scope Thread explaining that the government has threatened to sack and NHS staff willing to explain, assess, diagnose many recently explained disabilities including Auditory Processing Disorder as they did not want to pay to retrain the related NHS medical staff, and retrain the staff working in the education system, and explain these issues to employers.

    So the so called assessors still have a great deal to learn regarding the complex lifelong disabilities an individual may have and the possible alternative compensating skills and abilities they may develop from birth to work around their lifelong cognitive limitations

  • luvpink
    luvpink Online Community Member Posts: 3,928 Championing

    @dolfrog

    The assessors cannot possibly know about each and every medical disability and all of the possible symptoms of each medical condition.

    It would take years of formal specialist theory and practical training to reach that level.

    Regardless they are trained disability analysts who have completed a course enabling them to perform the role required of them.

    They are not required to have the level of expertise you refer to and these "so called asessors" can only perform their role in accordance with the training guidelines they have been given.

    It leaves a lot to be desired to but it's unlikely to change and as in any profession there will be those who perform poorly and require additional training and performance monitoring but they cannot all be tarred as being incompetent.

  • SheffieldMan1976
    SheffieldMan1976 Posts: 617 Connected

    Most of 'em are though IMO.

    Trust me, 27 years ago I suffered greatly from Job Centre Plus staff on a weekly basis.

  • luvpink
    luvpink Online Community Member Posts: 3,928 Championing

    @SheffieldMan1976

    Yes in your opinion but as far as I'm aware there are no official statistics to prove that.

    I would be interested if you are able to provide some.

    I wasn't aware that Job Centre Plus are trained disability analysts carrying out benefit assessments.

  • chiarieds
    chiarieds Online Community Member Posts: 17,434 Championing
    edited March 28

    @luvpink absolutely talks correctly about PIP. The form you receive actually says, 'How your disability affects you,' & that is key, as even people with the same disorder can be affected differently.

    Even the best medical professional in the world couldn't possibly know about every disorder & its many & varied symptoms.

    As mentioned, the Health Care Professionals who conduct PIP assessments follow guidelines for which they will have received training.

    PIP is not a medical assessment, rather looking at your 'functional ability' to 'reliably' be able to do those activities/descriptors that are looked at with PIP: https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria

    I don't think we will ever change your opinion @dolfrog as I note you're saying the same as you did in 2019 that PIP assessors, audiologists, psychologists, speech & language therapists, mental health staff, Drs., etc. are all incompetent. Despite several members, including poppy123456, trying to advise about PIP then, you thought that they weren't being supportive as you happened to disagree with what they said about PIP. We all spent quite some time trying to help you, so I'm dismayed nothing has changed.

    If you're going to mention a member of Scope (SurvivingTara) who had previously worked in the NHS, then please do so correctly. Their experience was in working in a mental health hospital in the early 1970s, & she didn't mention, ''recently explained disabilities including Auditory Processing Disorder as they did not want to pay to retrain the related NHS medical staff, and retrain the staff working in the education system, and explain these issues to employers.'' Those words I suspect are rather your own.

    As you were only diagnosed in 2003, then her experience in the 1970s could not have been about your Auditory Processing Disorder, so the above is a bit misleading.

    Strangely I was a Superintendent Physio in a large 1100+ bed mental health hospital in a later part of the 1970's, & my experience couldn't have been more different from hers. The Director of this hospital could not have been more supportive.

    For clarity, SurvivingTara's post can be seen here on p 11:

  • MW123
    MW123 Scope Member Posts: 2,052 Championing

    @chiarieds Thank you for linking that original post . I took the time to read the full thread, and it was a heartbreaking but beautiful example of people genuinely supporting each other through incredibly tough times. It reminded me of why I joined this forum in the first place.

    It is so important that the lived experiences shared here are remembered and respected in the way they were written. You are one of the few people who consistently uphold that, with a phenomenal memory, careful attention to context and a principled sense of fairness.

    The thoughtfulness you bring to discussions, and the care you take to ensure facts aren’t distorted, give this forum much of its backbone. Members may not always say it openly, but contributions like yours are a huge part of what keeps the community credible, humane and still worth being part of.

  • SheffieldMan1976
    SheffieldMan1976 Posts: 617 Connected

    With respect, back then I wasn't diagnosed as neurodiverse till October 1999, it wasn't until I eventually fell out with the Job Centre and told them to shove the poxy 35 quid a week Dole money up their ****, sideways, that I eventually got into the process of formal diagnosis.

  • luvpink
    luvpink Online Community Member Posts: 3,928 Championing

    @SheffieldMan1976

    Job center plus staff aren't trained disability analysts and you have stated the issues you encountered with them which are valid but not all of them can be tarred with a bad reputation as you said 'most are IMO' in relation to your perception of their competencies based on the ones you engaged with which would be relatively small given the amount of job center staff employed across the whole country.

    Same applies to disability analysts we cannot legitimately generalise and claim that they are largely incompetent.

    Thats based on peoples personal experience and opinion and as far as I am aware there is no official research figures available to substantiate that.

  • wonkydaze
    wonkydaze Online Community Member Posts: 54 Contributor

    I think it's valid for disabled people to feel frustrated by the system that makes them prove over and over again that they have a disability. I am going through the process yet again and every time I have to use the same evidence and diagnosis of a condition that is not obscure but the assessors choose to deny my explanation of the affects of my symptoms as lacking credibility. The techniques that are used of asking questions repeatedly and in different ways are the same as you would be expected to suffer if you were going through a criminal interrogation. We fill out forms answering their questions, we copy reams of information from our professional experts for them but then they use the interview as the main source of the assessment.

    My last assessor a physiotherapist chose to directly quote my response within a 4 hour phone interview as the main reason to deny my need for points in a descriptor, I was incoherent and rambling I was begging for the interview to stop. I remember thinking that I don't have the physical strength or mental capacity to carry this on as the words 'Oh, I don't know why' flippantly escaped from my mouth in regards to a question I had answered articulately previously. I actually do know why it takes so long for me to get dressed, but I just didn't have the mental capacity to answer at that stage in the interrogation. How is anyone expected to have the stamina to answer the questions in the format? Especially someone with MS.

    The assessors are very selective with the way they choose to not award the support we need. I can still see the smile spreading over the face of the occupational therapist who was at my home conducting my first PIP assessment, when my partner explained the distance that he would help me to get to the car. My partner believed that the fact that he was helping me would be the pertinent information, or that I was in pain or the effect getting to the car would have on me or the number of times I could do that repeatedly or reliably or that most days it would not be possible to get me to the car, but the assessor went out of their way to Google the exact distance that the car would be parked to find out which level of mobility I would be eligible for and ignored everything else.

    There are plenty of whistle blowers who explain the type of training that assessors get in order to undermine the testimonies of disabled people. I believe that the UN provided a fairly damning report on the way the system treats undisputedly disabled people. I believe that the evidence of the failure is the percentage of decisions that get overturned at tribunal.