Today is the day where LCWRA is almost halved for most new claimants

2

Comments

  • MissMarple
    MissMarple Online Community Member Posts: 381 Empowering

    People waiting ages for NHS treatment and they are too unwell to work in the meantime. Also, Covid had a long-term effect on literally hundreds of thousands of people. I personally know two people with Long Covid. One's health destroyed, unable to work at all. The other one halved their working hours, ditched all their hobbies and social activities and is still severely struggling. I wouldn't be surprised if their health deteriorates further and they end up on benefits.

    You can't just "choose" LCWRA. There's an assessment process, and the DWP decides based on evidence whether you'll get it.

    Some people seem to think that they are the only genuinely disabled and everyone else is just playing the system. The media is happy to report about the odd fraudulent claim, but they rarely mention the thousands who don't get support when they should, or those who struggle to live on the pittance that is Universal Credit. And it's not like there's an abundance of jobs out there and you just has to pick one. Even able-bodied people with tons of experience apply for hundreds of jobs to hear back nothing. Of course people get depressed, anxious and develop mental health issues.

  • SoapySoutar
    SoapySoutar Online Community Member Posts: 305 Empowering

    I have on occasion encountered the view that one should just keep appealing, until maximum payout is achieved.

    For myself, I don't get the top rate for care, as I just accepted what I was awarded. This was some time ago, I imagine I would get it next time.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,706 Championing

    I agree with you but from what im reading it has to be so progressive with no good days saying same for ms parkinsons as well but i hope im wrong

  • SoapySoutar
    SoapySoutar Online Community Member Posts: 305 Empowering

    I am more concerned about a generation of under 25s condemned to a lifetime on benefits. The cohort most likely to have good health, and yet they are too ill or disabled to work? I just don't buy the 'but Covid' line. We are now told kids weren't as at risk as was thought, which is it?

  • SheffieldMan1976
    SheffieldMan1976 Posts: 833 Connected

    I still don't think COVID was as big a "thing" as they made it out to be, and remember Boris Johnson was out Partying like it was NYE 1999 during BOTH the Lockdowns, not many would forgive him for that.

  • SoapySoutar
    SoapySoutar Online Community Member Posts: 305 Empowering

    I am 100% no Covid skeptic, I have heard recent committee assertions that perhaps the closure of schools was unnecessary. Of course, everyone is an expert after the event.

  • Santosha12
    Santosha12 Online Community Member Posts: 3,855 Championing

    There were estimated to be c 1.9 million people with Long Covid in 2023 with 1.3m having had symptoms for over one year and 762,000 symptoms for over two years (figures from the House of Commons Library: Coronavirus). c 2.6% of the population in England.

    In March 2024 the government said they'd invested £314 million in Long Covid services with over a 100 specialist LC centres. I don't know how many of these still exist; I suspect not many.

    From personal experience my referral to LC clinic took 3 years and only lasted a year as it was then closed, as many have, in March 2024. Many charities, patients and healthcare professionals have called for greater awareness and investment as there is still difficulty in accessing appropriate medical tests etc.etc. It took nearly four years for me to have the appropriate scans and is hardly surprising, to me, that the lack of early diagnose(s) and treatment led to 30+ diagnoses resulting in organ failure.

    What is surprising what I learned in January (Centre for Social Justice) was that there were 700,000 graduates in receipt of benefits with 240,000 on sickness benefits - this was double that of 2019. I am not suggesting this relates to Covid, I do not know/haven't interrogated the figures etc.

    I've wondered if appropriate care and interventions had been available to me, timely, would I have been 'fixed' (can't think of the word ha ha) and been able to have returned to work for the next seven years. Who knows, that is not something I concern myself with now. But very short sighted and no wonder the benefits Bill is so high. I feel very much for the younger ones especially, it feels like a lost generation. I was also at the mercy of many doctors strikes and here we go again with that. So basically, yes, Long Covid very much exists.

    Anyone with LC may already know that the charities Long Covid SOS; Long Covid Support and The ME Association are particularly valuable. If anyone was a healthcare professional as I was you can also apply to the Industrial Injuries Benefit, I've not bothered but it can be worth considering.

  • worried33
    worried33 Online Community Member Posts: 1,030 Championing
    edited April 8

    Maybe someone has made the same assumption about you, without you realising it? try to avoid judging others.

    The problem with this way of thinking is it leads to changes that punish everyone for hear say.

    If criteria is tightened, thats what makes it harder, not that someone "might" be pulling a fast one, I use the word might as there is no proof, and the assessment regime is one of the toughest in the world.

    I know someone with a back condition, it didnt stop him doing some work, but he would be bed bound for days after it. I used to do a bit of weeding myself, even though I can barely stand.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,706 Championing

    Correct in fact goverments rely on this mindset to push the agendas

  • MissMarple
    MissMarple Online Community Member Posts: 381 Empowering

    Kids and young people were at low risk of dying, however Long Covid doesn't correlate with the seriousness of the initial illness. You can have a flu-like experience with the initial infection, then just can't get out of it. I'm not saying it's all Covid why many young people are not in education nor work. I think it's a complex issue of health, mental health, society, the job market etc. The current prospects are grim.

  • SoapySoutar
    SoapySoutar Online Community Member Posts: 305 Empowering

    You will never find me playing down the devastating effects of Long Covid, but it just staggers me, all these young people wasting their lives on benefits.

    They are everywhere, I have one here, came out in his dressing gown to bring in the bin at nearly 16:00 the other day, whilst parent works 3 jobs.

    I hear him during the night, shouting at his computer games, then stay in bed until nearly tea time. A tragic waste of opportunity. I am told by parent that he has adhd, like that excuses doing nothing at all. What will become of these 'kidults' in 10+ years time?

  • MissMarple
    MissMarple Online Community Member Posts: 381 Empowering

    I agree that it's a shame @SoapySoutar I just think this is not an individual problem, like one person being lazy or whatever, but a societal failure. What is actually offered to these young people? Get a job where you are treated like sh** and your pay doesn't even cover rent and food? No hope to ever own a house, start a family, no spare time or money to actually enjoy life… And that's if you are lucky enough to be able to get a job, if it hasn't been outsourced yet to AI. No wonder young people are depressed and escape into games, social media or sleeping. Politicians tend to put the blame on the individual while what we need is societal change and hope.

  • SheffieldMan1976
    SheffieldMan1976 Posts: 833 Connected

    I still think ADHD/ADD is over-diagnosed, and in some ways I blame the Simpsons, several years ago they said Bart had ADD, hence his poor behaviour at school and always getting in trouble, and ever since, any badly behaved kid who struggles at school, the Parents are all like "Oh yeah he/she's got that Attention Deficit Disorder", be better Parents for Chuff sake!

  • Rachel_Scope
    Rachel_Scope Posts: 3,285 Scope Online Community Coordinator

    @SheffieldMan1976 being a parent is incredibly difficult, especially if the child has behavioural issues. There's not much support out there for parents who are struggling and it's even worse when the school isn't supportive. I've worked in primary schools and seen these issues first-hand, both with children who had been diagnosed and those who hadn't. I totally get your frustration with some situations but just wanted to share my experience.

  • worried33
    worried33 Online Community Member Posts: 1,030 Championing
    edited 2:05PM

    Its very likely under diagnosed, I had to fight my GP surgery for 6 months to get a autism referral (they were doing everything they could, losing forms, making me do them again and again, sending me on wild goose chases, and even had a GP laugh at me over the phone), I eventually got a phone call from the autism place advising me of the next steps, and the conversation was quite interesting, they told me they have been having problems with GPs lying to patients to prevent referrals, lying about waiting times and other stuff, there seems to be active decision making to artificially cut down mental health investigations.

    The real problem is there is no effective treatment, the NHS is on its knees, and stuff like this has no proper treatment and support for people, and this is why there is larger amounts of social exclusion.

    I rang the mental health option 2 on the NHS a couple of months back with severe issues (not ADHD), and at the end of 40 minute of questioning they simply advised anti depression tablets. I did a bit of research, and found its official NHS guidance to only take preventative action on these calls if it prevents a hospital visit (money based decision). Sadly its all about economical outcomes now.

    You may or may not also be aware that SEND support for children is about to be cut back significantly, this is another decision that will have consequences, all the affected children will as a result have a harder time in their adult lives, not just during school, as these things have a domino effect.

  • SoapySoutar
    SoapySoutar Online Community Member Posts: 305 Empowering
    edited 2:03PM

    I did every rotten job going when I was young, and the pay was terrible, the treatment rough. My parents would have told me to find somewhere else to live if I tried to sit around in my pyjamas.

    Not being well paid or worried about an employer shouting at you, does not excuse doing nothing at all, and expecting to be given benefits.

    When I was on peanuts, I couldn't buy a house either, but I had to pay 1/3 of that to rent a damp, cold flat from the council; one with single glazing and no heating. They need to stop dreaming about 'influencers' or whatever, and at least make an attempt at entry level work. All my working was pretty low paid, but it never occurred to me to sit around feeling like a victim.

  • Ross1975
    Ross1975 Online Community Member Posts: 909 Championing
    edited 3:28PM

    SoapySoutar, not everyone has the same capacity as you to handle a regular or difficult life.

    Some people struggle with health conditions, mental health issues, or other challenges that make daily life much harder and are genuinely not able to cope with a regular life let alone a difficult life, and for some this can even lead to suicidal thoughts or actual suicide. Being able to cope yourself doesn’t mean that others can simply ‘snap out of it’ or that their struggles aren’t real.

  • SheffieldMan1976
    SheffieldMan1976 Posts: 833 Connected

    I am painfully aware of that, back in the 80s when I was in Juniors and then Secondary, SEN education was terrible, they put me in the "Unit" during the Secondary years, and if I hadn't made friends with my ex I would've walked out on the first day (which will be 40 years ago next September) and refused to go back.

  • Catherine21
    Catherine21 Online Community Member Posts: 9,706 Championing

    Yeah life was easier back then compared to now and you could walk out of job into another the same day this is niggling at me big time sitting at home doing nothing you was lucky you had parents to guide you alot of young people dont so do you find ot more suitable of a young person in a wheelchair doesnt work is that acceptable but its not if the person has mental health thier lazy lay abouts ??

  • Rachel_Scope
    Rachel_Scope Posts: 3,285 Scope Online Community Coordinator
    edited 3:39PM

    Hi everyone,

    Just a little reminder to be empathetic towards each other as we all have different experiences and don't know what is going on in people's lives.