Ehlers danos

hi
my wife has multiple disabilities, I don’t seem to be doing enough in her eyes, I know I’m trying, I think I’m struggling with the thought of her getting worse, and seem to sweep issues under the carpet

I love her more than anything, Iknow I want to care for her and help her, it’s not a burden to me but I’m scared I think of what’s to come, we also have a 7 year old who I mainly get ready for school , go to work , pick her up from school take her to clubs and more.

I need advice how to cope, how to hopefully make things easier