Hi, my name is ania76!
ania76
Community member Posts: 7 Listener
My son Adrien is 6 years old and was diagnosed with ASD, and then with a very rare genetic condition called Pitt Hopkins Syndrome. I’m a single mum and we live in Scotland. It was so good to find this website!
Comments
-
Hi ania and welcome
Please have a look round and join in with any thread. If you have any questions just shout out
CR
Be all you can be, make every day count. Namaste -
Hi @ania76
Welcome to our online community/family.
I hope that things are ok in Scotland this afternoon ???
Please please have a good look around our site.
If you have any questions please let me know ???
Many thanks. -
@steve51
it was a busy day but all good! Thanks for the welcome! -
-
My daughter has autism and I know how isolated you can feel! X
-
@smaller78
thanks,yes, Adrien’s both diagnosis makes him a very complex case.. He’s non verbal, doesn’t walk, still in nappies, need to be fed etc but he’s a brilliant boy with a massive heart. We were lucky today to meet his personal assistant I’m about to employ ( as my respite option ), and she’s fantastic. Her son has disability, too, and she has worked for 10 yrs at my son’s schools, so I’m so happy.. I can’t possibly express how much.. We were only given 130 hrs for the whole year, but I’m so glad I’ve met someone who understands us. I know things will change for the better, soon.
How is your son’s autism affecting him? How old is he?
thanks a lot for replying to me X -
Hi @ania76
No probs it’s my pleasure!!!
Please please let me know if I can help you in anyway???
Thanks. -
@steve51
thanks! Just being here it’s great! -
Hi @ania76
It’s great to have you onboard!!!!
Please please let me know if I can help you further????? -
@steve51
will do, thanks! -
-
Hi @ania76
Welcome to the communityScope
Senior online community officer -
Hello and Thank you!
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 482 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 230 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 806 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 845 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.2K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 886 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions