Greetings from Devon

Aaw thanks..... 🫂 I will waffle if I just start telling about myself... 😆

I'm an artist. Sculptor too when my hands worked. Hopefully that can be fixed. I have cervical myolopathy and I was house and bed bound anyway for 25 years with a lumbar fusion I never really recovered from. A new miracle medication got me up and about but then my neck has happened right away. Now my arms and legs aren't working and I'm also alone now. So it all feels like the end but I mean, what do you do? Gotta try... So I'm trying and hoping I can still build a life like this somehow on my own... Its my 50th next month and I'm dreading it. I miss my pets that she took away too... Its all pretty ploppy really.... I feel like nobody will want me now but again, I'll have to try somehow... and that's me. 😎

Unfortunately arms and legs were mainly what did all my favourite things.. 😆

All that's on the cards for me is struggling around the emergency housing until I can be operated on. I'm hoping for a place of my own soon. I'm too old and broken for this.. So that's part of why I'm dreading it. I can't do anything let alone anything fun. I'm on the list for social care. But I mean.... My body is screaming at me that I should be in hospital NOW. Staying calm about this is difficult alone. Its so severe. My arms go purple if I try and use them. I stumbled if I get up and go faint. ... So yeah... the only grain of future I can even try to look at here is housing if that works out. Apparently the fact it was domestic abuse will help me... Unfortunately my brain does t work properly either from this. My spinal cord is impinged. Arranging things and planning is near impossible… Any given thing has last straw effect potential. But I've done well so far surfing the disaster wave....

The condition. Before I knew what it was a year ago now, my body was screaming at me then that something is drastically wrong get to hospital! And yup.... bone spurring and disc bulges crushing my actual spinal cord. I was half way convinced it was motor neurone disease onset given the scary symptoms and the fact I get new ones near daily and severity gets worse Almost daily. So myolopathy was kinda good news in a way because MND would mean death. So I live! Yay... with no arms and legs..boo.... I can feed and clean myself yes but its increasingly taking everything i have left to do it. Its clear that I'm heading for being unable to get up out of bed. I have vascular tests on Wednesday because there are also nerves arteries and veins getting cut off. Once they've done that they will know exactly what surgery is needed and then they tell me at the spinal unit.... I have bilateral nerve Impingement at c5-c6 with spinal cord impingement myolopathy, foraminal narrowing, bone spurring and radiculopathy.... 😎