My daughter is 19 and I have found the Transition process very tough

Oh my goodness @Trixie50, Its honestly such a nightmare to sort anything out once you become an adult.

I have a physical disability and therefore have to battle with all the services to get the things that I need from both the NHS, my Local Authority and Social Services. It seems frankly very odd that everything changes the day you turn 18. As if magically you no longer have your needs or require help.

The system for assessing personal budgets is an absolute mess and I still do not understand it (despite being a law student and reading the documents). They just seem to come and have a vague chat where you tell them absolutely everything about your personal life and they pluck some random number out of thing air and run with it. 

However, because your daughter has only recently become an adult in the eyes of the state, she should have been covered by parts of the Care Act 2014 which was meant to make the transition into adult services far smoother. 

I just find everything stops when you become an adult and is even worse if you get a job - you have to pay for adaptations that you would get free as a child, you have to make contributions to your care costs if your savings go over a certain level (a nightmare if you want to save up for a mortgage down south), you slowly slip down the priority list for things and perhaps worst of all you wind up in a system built for old folk that doesn't seem to realise that young disabled adults have very different needs to older folk.

Anyway that's my rant, if you need any help or advice you can either ask me or there are plenty of people on this community who will be more than happy to help you!

Thanks,
George

Have you got an EHCP? If your child is still in education the EHCP is ages 0-25...

You can be misled about this and If your child is 19 it is vital this is sorted urgently now as the law changes very shortly, I can't remember but think Feb but Sossen can advise...