If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Want to give us your opinion? Complete our annual survey.
Dealing with Hypersomnia

I am completely out of whack with sleeping. So far today I've spent over 14 hours asleep. I'm motivationally challenged too. Anyone have any ideas?
Replies
I really feel your pain, my sleep goes from one extreme to the other: I either don't sleep or I sleep for 15+ hours in a 24 hour period.
As hard as it is, I try to be strict with myself and get out of bed at a certain time. I'm on long term sick leave so enforcing a routine is difficult, but I try and be out of bed by 10ish and then I stay out of my room until the evening to avoid temptation of going back to bed. Whilst I don't bother getting properly dressed if I'm not leaving the house, I make the effort to get out of pyjamas, have a wash etc because it makes me feel more human and less zombie.
I also try and make sure that I have at least one task that I need to do everyday. That could be something like writing an article, or meeting a friend for coffee or boring adult admin. I know that I can't do it all in one day, but having something to do makes days more purposeful for me.
Is there any chance that you're having a flare up at the moment? Despite what I've said, sometimes you've just got to listen to your body.
Most people do not understand the difference between feeling tired and suffering from CFS, we try our best to fight it but in the end you have no choice in the matter what your body decides to do or where it decides to do it!
I have tried all sorts of supplements, energy drinks etc but nothing seems to work. Out of the blue I get an odd good day where I end up going mental trying to play catch up only to find Ive overdone things and........You know the rest
I think it's my Parkinson's playing up and conspiring with all the other malfunctioning bits of my nervous system to make me shut down for a bit. Sleep is returning to a reasonable, if extended, pattern of 12/24 .
Once again, thank you