Chronic pain disorder
Options
catherinerichards
Community member Posts: 7 Listener
Hi every one iv just been told iv got chronic pain disorder is there any help out there for me
Comments
-
hi catherinerichards
Yes there is help but you will probably have to fight for what works for you.
Work with your GP, try and get a referal to a pain management clinic
CR
Be all you can be, make every day count. Namaste -
To be honest since having injections it's far worsened my pain not sure what they have done but even every strong pain killer 15 mg of morphine patches I can not cope with any thing two mins standing walking from one room to the other movement choirs all unbearable pain not sure what to do next but can't carry on every day unbearable complete ly disabled an already injured body.. felt dismissed for having touch pain for Dr to cope with put on dealing with ur 0ain program was.nt like this before course of pain clinic injections in spineOnly me .. cathie..
-
Hi Cathie,
It's hard, really hard a life with chronic pain. But it is doable and it is a life worth fighting for.
So sorry to hear, pain is so **** isn't it..
It sounds life you're at the start of it all and there is help out there.
I can't stand more than 10 seconds or so and am now using a wheelchair outside the house. At the time (4 years ago) it felt like a big step but it has given me a lot more back. When I sit I have less pain so using wheelchair has made some things much better.
It's taking time... But gradually am making my home easier to live in.
It's F ING hard. And I've hard many times where I don't understand why life is like this.. ..But there have also been amazing times I'm glad to have been here for.
Medication.. Took me about 2 years to sort out my basic medication.... And I recently adapted it again. But again, worth the effort.
Did you get pain clinic referral?
-
I almost passed out with fatigue and pain today after being out on essential excursions on my feet. Try my best to do one activity per day but sometimes it’s more because I can’t change it. It really has a knock on effect.
-
Hi Cathy .sorry to hear you are also in the chronic pain team..for me personally going from being healthy fit youngish female ,loved work socialising .if found trying too an almost opposite life very hard and mostly frustrating .after breast cancer aggressive treatment ,etc been left like a different person..I've stopped boxing classes too mindful movement,mad notes out too struggling past nine o'clock .but I'm grateful I'm here even at a completely different pace .fianances and benefit system has been so stressful .but I find it very helpful speaking too others on support networks.saying no too lots of things and trying too be kind too myself .it really is the smallest of things that can help .its good too no your not alone xx
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 103 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions