Help needed! Changing from DLA to PIP - Page 2 — Scope | Disability forum
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Help needed! Changing from DLA to PIP

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  • poppy123456
    poppy123456 Community member Posts: 54,030 Disability Gamechanger
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    Yadnad said:


    The answer does seem to be that those who are happy with their decision manage to get professional welfare advice and support. Those that can't access any seem, like I have been, given the run around by the DWP. 
    Maybe you had professional advice and help or maybe you understand a lot more of how the PIP system works with your daughter's claim. I didn't and have never had that sort of advice or help - hence why I feel so negative sometimes.

    I did get help to fill out the forms yes from a local disability advice centre. However, the person that did the forms had the worst knowledge of PIP i've ever seen. The forms were filled in with the most limited info ever. He came to my home and i was sat right next to him. I gave him all of my daughters info yet hardly anything was put down. I thought i would have received the form back to post it myself and would add more info before doing so. Nope, the person told me it was their procedure to take it with them, photo copy it and send it their self. I panicked because i knew how badly the form was filled out. He took the evidence i had with him.

    I thought because it was filled out so badly it would have gone against her but the evidence i sent was really good. I highlighted all the areas in the evidence that pointed to the descriptors because i thought it would make it stand out more. What i sent was from her college, CAMHS and the learning disability team. During her assessment i was able to answer all of the questions because i'm her appointee, the HCP was very nice. My daughter was dressed nicely, as always, with her hair perfect, it didn't go against her as a lot of people think.

    They also contacted 2 people, 1 from college and another from learning disability team just to confirm a few things, i was told. Yes, that's rare.

    I really do believe that if the form had been filled out with more info then she could have had a paper based assessment. Getting help from professional people as you stated doesn't always give the claimant a better chance of success, im certain that if it wasn't for the evidence i sent she would have been refused.

    I'll be filling out the review forms myself and making sure that i put down everything that she needs help with and including all the extra medical evidence i have received in the last 6 months.

    Being so negative really doesn't help people who are already scared to death. I realise you're angry but you keep repeating your story on so many threads, is there really any need to keep doing that?
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • sahara01
    sahara01 Community member Posts: 31 Connected
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    I agree with Poppy negative comments don't help in the slightest I'm already worried sick as I can't use public transport 
    As previously mentioned I have over 26 chronic medical conditions but still worried
    I tried to get professional help for when my form arrives which should be any day now but will have to fill it in myself (decided in the end to do that anyway) as all their appointments are in the mornings and I struggle mornings which is why all my hospital appointments are always in the afternoons 
    Got an echo tomorrow in preparation for my operation on 16th 
    All very stressful
  • sahara01
    sahara01 Community member Posts: 31 Connected
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    Now on top of everything else I've been informed this morning by the diabetic eye clinic I may have a possible cataract in left eye
    Waiting to see a specialist
  • Yadnad
    Yadnad Posts: 2,856 Disability Gamechanger
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     He took the evidence i had with him...….I thought because it was filled out so badly it would have gone against her but the evidence i sent was really good. I highlighted all the areas in the evidence that pointed to the descriptors because i thought it would make it stand out more.....im certain that if it wasn't for the evidence i sent she would have been refused.
    In your daughter's case, it came down to your knowledge of how PIP is awarded. You knew what evidence to send in and how to link it to the descriptors.
     You accept that the claim for your daughter actually hinged on how you presented the right evidence.


    Many like me, are completely flummoxed with how PIP works and what is the 'right' evidence. On top of that how do people accumulate this right evidence? Bearing in mind that there were restrictions up until this year set down by the DWP that all evidence should not be more than two years old, that any evidence previously sent in with an earlier PIP claim should not be resent with the review claim and that you (the claimant) when putting the evidence together should not go looking for it if it isn't readily to hand which includes asking the GP etc as there may be a cost involved.


    Personally I didn't have any evidence with the first PIP claim. At MR I asked my GP to put together a report as to my abilities, conditions etc to be taken from the various consultant's reports. This gave me Enhanced Care & Mobility at MR. For the second claim I still had no evidence as I had sent the GP report in previously for the first claim. I received no points. I told the DWP to look at the GP letter on their file which clearly was less than 2 years old and was still relevant. This they did and I went from 0 points to Enhanced Care & Mobility following the second MR
    As for the third review I once again had no evidence and because the GP report was now over 24 months old I pointed out that they could not accept it according to their rules. Obviously the third MR then failed.


    Having the knowledge that you have with regards to PIP actually gave you that edge over those that know nothing. 
     
  • littleruthie123
    littleruthie123 Community member Posts: 511 Pioneering
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    I understand what u mean yadead it can be such a complex the whole process. P.I. p .is went it alone on my second review and it showed in my points .I've learnt too try explain flutations more clearly .and have better knowledge of relevant evidence .
  • Yadnad
    Yadnad Posts: 2,856 Disability Gamechanger
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    I understand what u mean yadead it can be such a complex the whole process. P.I. p .is went it alone on my second review and it showed in my points .I've learnt too try explain flutations more clearly .and have better knowledge of relevant evidence .
    I gave up after 5 years of fighting the DWP for every PIP claim/review.
  • littleruthie123
    littleruthie123 Community member Posts: 511 Pioneering
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    Sahara your anxiety sound similar too mine .part of complex anxiety conditions. It certainly dosent help with all the worry .just wanted too say welfare rights can come out too you or help you through a phone call with anything your unsure off on your form .so please don't loose hope x
  • sahara01
    sahara01 Community member Posts: 31 Connected
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    I will be sending a letter from my GP and also stating that Im more than halph for them to contact my GP and all other hospitals I continuously attend but what other evidence do I need?
    Getting sick of this before my form even arrives ?
  • sahara01
    sahara01 Community member Posts: 31 Connected
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    Happy not halph typo

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