Work issues - can anyone help?
Hello everyone, I’m new to this having just found the advert on Facebook. I hope I am able to get some friendship and advice and hope I can do the same for others. I am having a few issues right now so apologies for what I imagine may be a long post. Hopefully there will be some context throughout the length and it’s not all waffle. So here goes....
I have a condition called palmar pustulosis Psoriasis with psoriatic arthritis which affects my hands By either being covered in scales, pustules or scabs along with psoriasis on my nails and this culminates in a lot of pain and difficulty in movement and the skin spitting cracking and bleeding. As you can imagine this is all very sore and makes it hard to do a lot of things. I am under a dermatologist for this and I’m receiving lots of help but there is that much more they can do for me because of the localised way my conditioners means that certain medications/treatments cannot be afforded for me. But this I am coping with.
I also have osteoporosis in my spine, osteopenia in my hips and spinal arthritis. I have suffered fractures in my spine and have spent time in hospital and wearing support brace and using crutches for these. My condition is not improving despite taking medication, I will never get better, and I regularly visit the doctor at the hospital to monitor this and have scans Which will determine my treatment which may consist of Prolia injections in the future.
I am an adult with Asperger’s syndrome. I was diagnosed late in life so I have not received any support and nor will I ever. I have tried to help others understand what the world Is like for me. But, because I appear “normal “, people think there’s nothing different with me. I struggle every day with situations that other people have no problem with at all. This is really quite exhausting.
Despite all this I have a full-time job and work for the NHS. Last year I was made redundant from my job in the NHS which was a great job. Following that I have taken on this new new job, which is causing me a lot of stress and anxiety. These are things I already suffer with as part and parcel with my Asperger's.
So here are the issues:
My job requires me to sit for long periods of time, this is something I am not able to do this causes me a lot of pain. Occupational health at work said I need to take plenty of micro breaks and have a proper chair to support my spine. My boss Arrange for a new chair to be ordered for me and for an osteopath for coming and adjust it. The chair was the same as everybody else’s, and as soon as I’m not sitting in it someone else will come in and adjust it so I don’t know which is my chair and consequently I suffer with backache. She also does not allow me to take micro breaks by virtue of the fact that she has me sitting in meetings for three hours taking minutes. I have told her this is very painful, I lose concentration I stop listening, I take a painkiller and it is not acceptable.
After one week of back-to-back meetings and constantly being nagged for not getting my work done because we are shortstaffed in our team and I am constantly taking minutes I finally had a break down and became suicidal. My GP signed me off work with stress. This was 3 months ago.
Work recommended another visit to occupational health which I was pleased to attend. However, the doctor eyesore this time I’ve decided that I’m overweight and lazy and exercise will fix all my problems. She does not believe that I am to be considered disabled in any way. She categorically stated that spinal arthritis was nothing and this is something the doctor says when they don’t know what’s wrong with you. You can imagine how much this upset me. My mental health is considered quite considerably following this appointment and this resulted in me wanting more time off work.
I visited my GP and asked for an exercise referral as 0H had suggested. Unfortunately, the service have rejected me because I have a heart murmur, so that's that. My GP was appalled when I told him how she was able to diagnose me without even examining me or seeing any of my notes or scans.
Last week I visited my consultant at the hospital who looks after my osteoporosis and spine conditions. He also was disgusted at her attitude. I have asked him for a physio referral with the hopes that physio can help with pain and show me which exercises I can do and suggest classes I could attend safely. He was happy to do this.
To make things clear I have been considered disabled for a couple of years now and I am in receipt of PIP at standard rate and also have a blue badge for my car. Occupational health at previous employment had made a note on my records that I would be classed as disabled under the equality act and should be treated as such.
My problem now is I am still off sick from work I am on half pay and this has all culminated in stress because of my disability not been able to carry out my job and satisfactory adjustments not being made. Which they won’t be because as far as they are concerned now I have no disability and I am not protected under the equality act any more.
I have no understanding of how benefits work, everything I’ve read tells me I’m not entitled to anything. I am looking for another job but I am afraid that I will have yet another unsympathetic employer and I will be in pain all day. I can’t go back to this job, I’d rather die. I don’t know what to do. I am receiving counselling for this, so what I really need is practical advice. If anyone is able to please offer some.
I am extremely depressed and suicidal, I do not know what to do. I don’t know where I stand I don’t know how I will pay my rent I am very worried about everything. I feel my body is broken and my mind is too, I feel like I’m a burden to everyone.
So sorry for the long post, I hope someone can pick through this and see if there is any advice they can offer me.