Hi, my name is W33lal!
Options
W33lal
Community member Posts: 1 Listener
I have sclerotic arthritis fibromyalgia osteoporosis in my spine and osteoarthritis in my hips. I try to keep busy as when i am busy i dont feel the pain but its a different story when i stop. My family's struggles to understand my illnesses and i therefore feel like a fraud its in my mind but my conscious side knows it is not does anyone else feel like this and is there anything i can do to support my family to understand and cope with my problems i am on palliative care now as they cant do anymore to help me thankyou in advance Alex xx
Comments
-
Hi W33lal,, my name is Paul, I don't suffer the same illness as yourself but I can empathise with the way you feel. My father had Rheumatoid Arthritis and had a job as a driver but he used to say the only way to avoid pain with any form of Arthritis is, as you say keep busy, I hope your family comes to understand your situation quickly because I know that most people that suffer some kind of impairment benefit more when they have an understanding family. All the best.
-
Hi @W33lal and a very warm welcome to the community! Thank you for taking the time to share this with us all. Please have a look around and let me know if there is anything that I can do to help
Scope -
Hi @W33lal
Welcome to the community!Disability Gamechanger - 2019 -
Welcome to the community @W33lal
I am so sorry to hear that you are struggling, it must be worrying to be on palliative care, it must feel really overwhelming, but I hope we can help support you here on the community.
If you want you could speak with one of our friendly helpline team over the phone You can reach them at 0808 800 3333.Scope
Senior online community officer
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 103 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 867 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions