Welcomes and introductions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.

Hi, my name is W33lal!

W33lalW33lal Member Posts: 1 Listener
I have sclerotic arthritis fibromyalgia osteoporosis in my spine and osteoarthritis in my hips. I try to keep busy as when i am busy i dont feel the pain but its a different story when i stop. My family's struggles to understand my illnesses and i therefore feel like a fraud its in my mind but my conscious side knows it is not does anyone else feel like this and is there anything i can do to support my family to understand and cope with my problems i am on palliative care now as they cant do anymore to help me thankyou in advance  Alex xx

Replies

  • pwbuttpwbutt Member Posts: 8 Listener
    Hi W33lal,, my name is Paul, I don't suffer the same illness as yourself but I can empathise with the way you feel. My father had Rheumatoid Arthritis and had a job as a driver but he used to say the only way to avoid pain with any form of Arthritis is, as you say keep busy, I hope your family comes to understand your situation quickly because I know that most people that suffer some kind of impairment  benefit more when they have an understanding family. All the best.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,662 Disability Gamechanger
    Hi @W33lal and a very warm welcome to the community! Thank you for taking the time to share this with us all. Please have a look around and let me know if there is anything that I can do to help :)
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • Ami2301Ami2301 Community champion Posts: 7,139 Disability Gamechanger
    Hi @W33lal
    Welcome to the community!
    Community Champion
    Disability Gamechanger - 2019
  • Sam_ScopeSam_Scope Member Posts: 7,732 Disability Gamechanger
    Welcome to the community @W33lal
    I am so sorry to hear that you are struggling, it must be worrying to be on palliative care, it must feel really overwhelming, but I hope we can help support you here on the community.

    If you want you could speak with one of our friendly helpline team over the phone You can reach them at 0808 800 3333.
    Scope
    Senior online community officer
Sign in or join us to comment.