If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.
Hi, my name is W33lal!
I have sclerotic arthritis fibromyalgia osteoporosis in my spine and osteoarthritis in my hips. I try to keep busy as when i am busy i dont feel the pain but its a different story when i stop. My family's struggles to understand my illnesses and i therefore feel like a fraud its in my mind but my conscious side knows it is not does anyone else feel like this and is there anything i can do to support my family to understand and cope with my problems i am on palliative care now as they cant do anymore to help me thankyou in advance Alex xx
Replies
Scope
Tell us what you think?
Complete our feedback form to help us to improve your community.
Welcome to the community!
Disability Gamechanger - 2019
I am so sorry to hear that you are struggling, it must be worrying to be on palliative care, it must feel really overwhelming, but I hope we can help support you here on the community.
If you want you could speak with one of our friendly helpline team over the phone You can reach them at 0808 800 3333.
Senior online community officer