Cerebral Palsy
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Want to give us your opinion? Complete our annual survey.

SDR Surgery in UK

albalushialbalushi Member Posts: 5 Listener
edited September 2018 in Cerebral Palsy
Pls I'm looking for the best center or hospital or doctor performing the SDR surgery in UK and how much that will cost for private patients (oversees) as i have my son 5 years old and he is eligible for SDR as confirmed in London. 

Replies

  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @albalushi, here is some information that I have found about SDR. I hope this helps :)
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • spykespyke Member Posts: 2 Listener
    edited October 2018

    Hi Albalushi

    My daughter had SDR in Leeds a few of years ago when she was 5, the team there are fantastic and reassuring, Dr Goodden also works in London.

    contacts below  for his sectary

    [email address removed by moderator]

    Mr John Goodden
    Consultant Neurosurgeon (Adult & Paediatric), Leeds General InfirmaryJoint Clinical Lead of North East Paediatric Neuroscience Network

    Good Luck. Steve

  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Welcome to the community, @spyke
  • atlas46atlas46 Community champion Posts: 827 Pioneering
    Hi 

    You could contact the UK embassy in your country. There are numerous "mutual arrangements" between the UK and counties across the world, to improve child healthcare.

    They would also link you to the NHS in England.

    Did the Dr you saw in London not recommend where to have the operation in England?
  • albalushialbalushi Member Posts: 5 Listener
    Thanks altas46 for your comments and advise. In regard of London the only constraint we felt is the cost which is almost 40% extra than others around the UK. 
    I will approach the UK embassy in Oman and it may help our situation. 

    thanks 
  • atlas46atlas46 Community champion Posts: 827 Pioneering
    Hi

    There are about six hospitals in England, that carry out this surgery, most will be cheaper than a London hospital.

    There may be informal links to Oman, as many Dr's will have trained in UK, before returning home. I would try speaking to Surgoens in Oman, if they trained in UK.

    Best wishes to you and your family.
  • spykespyke Member Posts: 2 Listener

    Albalushi

    We had the SDR operation done through private medical, the total end price was around 70,000 GBP plus the extra cost of travel and renting a cottage for a month. not the cheapest of treatments, but the tension release in her lower legs was well worth the expense and worry.

    Steve

Sign in or join us to comment.