PIP and Joint Hypermobility?

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Androgen
Androgen Online Community Member Posts: 88 Contributor
edited July 2024 in Housing and independent living
Does anyone have any experience of claiming PIP for Joint Hypermobility Syndrome?

It seems as though the variation between good days (virtually no issues) and bad days (not really being able to move at all) means that it "varies too much" to actually qualify for anything in mobility?

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  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    edited November 2018
    Hi,

    PIP isn't awarded based on a diagnosis, it's how your conditions affect your ability to carry out daily activities based on the descriptors. If you're affected at least 50% of the time then it's possible. There's more to PIP than mobility. For the daily living part there's 10 descriptors.

    People claim PIP for all different conditions because of the way they're affected by them but you can't compare 2 people because we're all different.

    If you apply then evidence will be needed and a face to face assessment is most likely as most people have them.

  • Androgen
    Androgen Online Community Member Posts: 88 Contributor
    I understand how all the descriptors and stuff work (I already get PIP)

    I was just wondering if anyone on here has experience with PIP nad hypermobility specifically, because I get 0 points for anything to do with my hypermobility, even though it does cause problems on an almost daily basis, because they've said there's too much variation between good and bad days
  • pixie61
    pixie61 Online Community Member Posts: 67 Contributor
    My daughter has hypermobility & EDS, she gets pip, I went to the f2f with her & we told the assessor exactly how the conditions affect her on a daily basis, the help she needs & gets not only on her bad days, but the better days too. It’s a debilitating degenerative condition. In my daughters case the bad days put weigh the good ones! 

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