PIP And Colostomy

poppy123456 said:

Hi,

Managing toilet needs or incontinence.

This activity considers a claimant’s ability to get on and off the toilet, to manage evacuation of the bladder and/or bowel and to clean afterwards.

This activity does not consider the ability to manage clothing, climb stairs or mobilise to the toilet.

Notes

Managing incontinence means the ability to manage involuntary evacuation of the bladder and/or bowel including the use of a collecting device or self-catheterisation and cleaning oneself afterwards.

Claimants with indwelling (permanent) catheters or stoma are considered incontinent for the purposes of this activity.

If the urinary tract is normal there will be little risk of incontinence no matter how long it takes to mobilise to the toilet. If there is, however, a bladder problem and the claimant will be incontinent before they reach the toilet, then a commode could be considered as an aid for the bladder condition (toilet needs) not for the mobility problem (mobility needs). Urinary tract conditions that cause urgency of micturition will be relevant in this context – other urinary tract conditions may not be relevant.

‘Toilet needs’ is defined as:

(a) getting on and off an unadapted toilet;

(b) evacuating the bladder and bowel; and

(c) cleaning oneself afterwards.

This means that changing bedding and clothing is not counted with the descriptor. A stoma is classed as a aid. The question here is, do you need assistance to manage your stoma or do you manage it yourself?

poppy123456 said:

You won't score any points for needing help with changing your bed. For using an aid with the toilet you should have scored 2 points. What did you score in total for the daily living part? and Did you score any points in managing toilet needs/incontinence at all?

poppy123456 said:

You won't score any points for needing help with changing your bed. For using an aid with the toilet you should have scored 2 points. What did you score in total for the daily living part? and Did you score any points in managing toilet needs/incontinence at all?

poppy123456 said:

It should have been 2 points for this. I see by other threads that you're currently waiting for a Tribunal date. Please remember that you need to score at least 8 points for a standard award. Good luck with the Tribunal.

poppy123456 said:

I'm not sure how i would know that wasn't the only part of the report that was wrong, as i've not seen your report.

Waiting times for Tribunals are huge right across the country and some areas are waiting more than 1 year for a hearing date.

Sam_Scope said:

Hi @Gerald

So here are the points for toileting needs and PIP

Managing toilet needs or incontinence is a daily living activity. Add the points you score for this activity with the points you score for other daily living activities to find out if you may be entitled to the daily living component of Personal Independence Payment (PIP).

When you are looking at how many points you score for going to toilet, think about what help you need most of the time to do it:

• Safely
• Well enough
• Often enough
• Fast enough

You score the points for the sentence that is true for most or over half of the time. If more than one sentence is true, you normally only get points for the sentence that is true for the most time. You can only score one set of points for going to toilet, do not add them together.

No points

You can get on and off the toilet, go to the toilet and clean yourself afterwards without any special aids.

You suffer from incontinence, you can manage it yourself and you can clean yourself afterwards without any special aids.

Examples of special aids:

• Adapted toilet or commode
• Incontinence pads
• Grab rails

Two points

You can only get on or off a normal toilet, go to the toilet and clean yourself afterwards with a special aid.

You can only get on or off a normal toilet, go to the toilet and clean yourself afterwards if someone reminds you or watches you to keep you safe.

You suffer from incontinence and you can only manage it yourself and clean yourself afterwards if you use a special aid.

You suffer from incontinence and you can only manage it yourself and clean yourself afterwards if someone reminds you or watches you to keep you safe.

Four points

You need someone to help you to get on or off the toilet, go to the toilet or clean yourself afterwards.

Six points

You suffer from incontinence (either bladder or bowel) and you need someone to help you to manage it or clean yourself afterwards.

Eight points

You suffer from incontinence (both bladder and bowel) and you need someone to help you to manage it or clean yourself afterwards.

It is difficult as some would consider you not needing support if you can change your ostomy bag alone., though I would think that it would count as a special aid.

I have an ileostomy bag and so I do understand the stresses of life with a stoma, I also have parastomal hernias and problems with my joints. 

You can appeal the decision by going through a Mandatory reconsideration 

Pippa_Scope said:

Hi @Gerald, if you have concerns about your stoma and your health, you need to be contacting a medical professional who can help. Please ring your GP, or if you need help urgently, call NHS Direct on 111.