Help! — Scope | Disability forum


fuzzy1970 Member Posts: 2 Listener
Hi, my daughter is 20 and has Tourette's, severe anxiety and is also on a waiting list for a diagnostic autism test. I am her carer and have been since she was first diagnosed. Her tics have become worse, but been given meds. She has now been put forward for a referral for an assessment with social services to see if they can access more help for her...I can't tell my daughter my worries for her but I want to know how she can become semi independent when she is having so many issues? Will she need sheltered housing, if she becomes pregnant will the baby inherit her condition, will she be able to drive and which employers are disability friendly? Yesterday was too much as she had severe tics, and hurt herself in the process...I've had to leave work early today as I feel so stressed ? Any help would be great, thanks guys ?


  • Tarpuk4
    Tarpuk4 Member Posts: 34 Connected
    Your social worker should be able to answer these questions and she could always go into supported living, which again your siciso worker can help you with that xx
  • Richard_Scope
    Richard_Scope Posts: 3,144 Scope online community team
    Hi @fuzzy1970
    Good to meet you. You really have been coping with a lot. Here is the website for our friends at Tourettes Action 
    Remember, you are not alone. :)

    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    edited March 2019
    Welcome to the community, @fuzzy1970!

    I'm so sorry to hear you're feeling stressed. It sounds like a challenging time for you all, but you're among others who understand here. The social workers and doctors your daughter sees may be best placed to answer specific questions about her condition, but as Richard says, Tourettes Action are great too:


    Unfortunately, some people with TS have difficulties with their housing situation. We have put together details of some potential housing issues that people with TS could face, and how you might look to resolve them.

    The guide also contains organisations to contact with housing queries. Please note that Tourettes Action does not specialise in housing policy and is unable to assist with individuals’ housing cases. We suggest you contact the organisations listed in this document for advice.
    Download the housing & TS factsheet.


    Download our Factsheet (right column) - Employment and TS which looks at:

    • Steps to employment: Choosing careers, job finding, interviews;
    • Disclosing your condition to your employer: When is it appropriate to tell your employer you have TS, telling your colleagues;
    • Managing stress at work: self-help tools to help manage stress;
    • Responsibility of the employer: Employer’s duty to disabled workers, reasonable adjustments;
    • Discrimination in the workplace: What to do if you feel you have been discriminated against at work, bullying;
    • Other types of employment options for people with TS: Social firms, self-employment; and,
    • Useful organisations and resources.

    Tourettes Action recorded a webinar with Occupational Psychologist Nancy Doyle who specialises in supporting people with neurodiverse conditions to survive and thrive in the workplace.  The webinar covers: Tourettes and neurodiversity, reasonable adjustments, and how to feel supported in the workplace. An informative resource for employees and employers - watch it here. Nancy Doyle featured in award winning BBC series Employable Me.

  • fuzzy1970
    fuzzy1970 Member Posts: 2 Listener
    Thanks everyone for the information ?