DLA to PIP change
problems with the DLA to PIP process.
Hello everyone -
I’m new to this site - but I’ve been reading your posts for weeks - trying to pluck up the courage to join in and ask for help - as nobody I’ve contacted so far seems to know the TRUE rules when it comes to the DLA to PIP change over.
What do you make of this?
I was given a DLA Lifetime Award back in 1997.
Along with ESA and all the top’ups.
The DLA Award was for mental health issues.
But my physical health has deteriorated in recent years and in 2005 I was diagnosed with KypoScoliosis as well as CPOD.
Sadly my husband was killed in 2014 and I had to sell our house in London - I’ve since moved to East Sussex.
But my new GP has refused to treat me for conditions I already had when I moved here. He has also withheld a lot of my usual medication - meds that enabled me to cope and live independently.
He’s also refused me ANY mental health support - or treatment for my KypoScoliosis or my CPOD.
It’s now been 4 YEARS -
I’m back to self harming and haven’t left my home in a year due to the return of my agoraphobia, severe panic attacks, and all the other horrendous symptoms I spent 10yrs getting under control.
When I moved here I could still walk - but without the treatment for my Scholiosis that I begged for - I’m now in a wheelchair and I’m bladder incontinent. Not to mention suicidal.
My new GP’s reason for treating me so badly? The treatment I need is too costly - and he doesn’t have my medical history.
After 4yrs of this **** I had a total meltdown last summer & different agency’s got involved.
STEPS pushed me into applying for PIP - I kept saying “NO I’ll wait until the DWP contact me themselves - I’m not risking my DLA if I don’t have to”.
But STEPS kept on & on & on - so in the end I was so weak & mentally fragile I agreed to let them do the change over.
But the letter informing me of WHEN they were coming to assess me - went to a wrong address. So when they came I was on route to the Pain Clinic.
Within days - my DLA was taken away - my PIP was refused & ALL my ESA top ups were also taken away.
But In under a week my carer got a letter from my nurse as ‘proof’ of why I missed my assessment - and sent it of for the ‘mandatory reconsideration’ - which they accepted.
EVERYONE told me IF they accept the ‘proof’ I’d sent, which they DID, Id keep my DLA until it was all ‘sorted out’.
But they still took everything!!!
I’m now up to my neck in debt and after paying everyone off monthly I’m left with £27 a week to live on.
Am I finally losing it??
I haven’t eaten in over a week and all I keep hearing is
“They can’t do that - it’s illegal”.
Well the DWP HAS DONE IT.
I’m not fabricating my condition - it’s all well documented in my medical history.
For example - as I type this -
I have builders from my Local Council adapting my bathroom into a wet room & adding other helpful things.
I’m so confused & alone.
Has the world gone mad??
- 54.2K All Categories
- 10.6K Start here and say hello!
- 5.1K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities
- 157 Community updates
- 12.1K Talk about your situation
- 1.8K Children, parents, and families
- 800 Work and employment
- 591 Education
- 1.2K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 293 Dating, sex, and relationships
- 266 Exercise and accessible facilities
- 21.8K Talk about money
- 2.2K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.6K PIP, DLA, and AA
- 2.6K Universal Credit (UC)
- 4.1K Talk about your impairment
- 1.3K Cerebral palsy
- 688 Chronic pain and pain management
- 709 Rare, invisible, and undiagnosed conditions
- 759 Autism and neurodiversity
- 941 Mental health and wellbeing
- 311 Sensory impairments
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.