we often feel isolated and struggle to access the real world.. — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

we often feel isolated and struggle to access the real world..

KayJayD
KayJayD Member Posts: 4 Listener
Hi, I'm new and have no idea what happens here. I'm disabled, my partner is also disabled and we care for each other.. we often feel isolated and struggle to access the real world..

Comments

  • Gerald
    Gerald Member Posts: 214 Pioneering
    Hello KayJayD  welcome to the community. I’m Gerald all the best :):)
  • Ami2301
    Ami2301 Community Co-Production Group Posts: 7,941 Disability Gamechanger
    Hi @KayJayD welcome to the community! You're not alone as many of our community members will be able to relate! Would you like to tell us a bit about yourself? :)
    Disability Gamechanger - 2019
  • Adrian_Scope
    Adrian_Scope Posts: 8,098

    Scope community team

    Hello @KayJayD and welcome to our community. How are you doing today? I completely understand about that feeling of isolation. Is there anything in particular you need support with?
    Community Manager
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @KayJayD

    Welcome I’m one of the Community Champion’s here at Scope.

    We are a very very friendly/supportive bunch on here.

    Please please let me have a good look 👀 around & please let me know if you have any problems/questions??

    @steve51


  • bendy_bonnie
    bendy_bonnie Member Posts: 15 Connected
    Hi, thanks for your reply on my post. My partner and I both have disabilities too. I know how you feel!
  • Edster77
    Edster77 Member Posts: 162 Courageous
  • KayJayD
    KayJayD Member Posts: 4 Listener
    Thanks everyone for a warm welcome. 
    My main problem would be having things to look forward to. I read once that all you need to be happy if someone to love - that's my wife- something to do, and something to look forward to. It's hard to plan when you don't know how you're health is going to be at any given time, added on to the physical problems of disabled access or accessible toilets etc etc.. I'm sure everyone's had experience of that.
    I'd like to book a trip away for our anniversary next month, but it's so frustrating - past experiences, hotels that advertise as disabled access, then have 15 steps at the entrance - but if you go to reception there's a ramp - reception there's at the top of the steps.. its often like an episode of Fawlty towers..
  • Jackwood
    Jackwood Member Posts: 2 Listener
    Where abouts do you live KayJayD?
  • KayJayD
    KayJayD Member Posts: 4 Listener
    We live in Surrey.
  • Chloe_Scope
    Chloe_Scope Scope Posts: 10,565 Disability Gamechanger
    Hi @KayJayD and welcome to the community! I can relate to finding it difficult to forward plan as a result of health- it can be very frustrating and disheartening! Have you heard of Euan's guide? This has reviews of places all over the world. All reviews look at disability access and have been written by disabled people who have visited it. I hope this helps if you do go away for your anniversary :)
    Scope

  • KayJayD
    KayJayD Member Posts: 4 Listener
    Thanks, we haven't heard of that, but will definitely check it out. Thanks.

Brightness

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.