New member with Sitting Disability
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ReikiSong
Community member Posts: 5 Listener
Hi everyone!
For nine months now I have been unable to sit without pain that starts at level 5 and gets worse the longer I sit. The condition has stumped an array of Western and Eastern medical professionals. Cortisone injections (four times). MRI of lumbar area doesn't explain the pain. I found an actual Wikipedia page on "Sitting Disability" which basically concludes many of us have it and no one knows how to treat it. Fortunately, I work from home either at a standing desk or a lapdesk I have modified to allow me to type on my Mac Air while lying flat on my back.
I am hoping that here at SCOPE I might find not only support, but maybe some solutions (other than surgery, which has no assurances associated with it). Pain relief, for the time being, is a 50/50 combo of THC and CBD, but that only takes an edge off and obviously doesn't address the core issues, whatever they are.
For nine months now I have been unable to sit without pain that starts at level 5 and gets worse the longer I sit. The condition has stumped an array of Western and Eastern medical professionals. Cortisone injections (four times). MRI of lumbar area doesn't explain the pain. I found an actual Wikipedia page on "Sitting Disability" which basically concludes many of us have it and no one knows how to treat it. Fortunately, I work from home either at a standing desk or a lapdesk I have modified to allow me to type on my Mac Air while lying flat on my back.
I am hoping that here at SCOPE I might find not only support, but maybe some solutions (other than surgery, which has no assurances associated with it). Pain relief, for the time being, is a 50/50 combo of THC and CBD, but that only takes an edge off and obviously doesn't address the core issues, whatever they are.
Comments
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Hi @ReikiSong
Good Evening & Welcome ??
I am one off the Community Champion’s here at Scope.
Yes we have got another member who is in the same situation as you.
I will forward your post onto them & I do hope that this is helpful????
Hi @notebooksandglasses
Can you please help me with this post????
@steve51
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Hello @ReikiSong Pleased to meet you welcome.
Thank you for joining and sharing.
Sorry to hear about your medical condition. You come to the right place for support and information.
I am one of the team of community champions. We guide, advise and help new members who join the community.
Please if we can help with anything . Please ask. Some one will know a member of our team or a member of our community.
Please take care.
@thespiceman
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes -
Hi @ReikiSong and welcome to the Community. It is nice to meet you and thank you for sharing. I am very sorry to hear about your Sitting Disability and the fact it causes you so much pain. You have come to the right place for support so please let us know if we can be of any further help to you. All the best.Winner of the Scope New Volunteer Award 2019.
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Hi @ReikiSong and a very warm welcome to the community!
Thank you for taking the time to share this with us all. I hope the community will be able to provide support and guidance.
You may find the disability equipment board interesting if you are looking for adaptions.
Please do have a look around the community, get involved, and let me know if there is anything I can do to help!Scope -
Hello @ReikiSong welcome to the community. I’m sorry to hear of your struggles with your sitting disability. The community is a lovely bunch so if you need any information or any assistance getting around the community just let us know and we’ll be happy to help.
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Thank you all very much for welcoming me.
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Hi, I`m a full time wheelchair user and can only get really comfortable when sitting in my recliner. I had an Occupational Therapist come out and assess me. She had a bespoke chair made for me.
I realise you are still working, but maybe an OT could advise you. It would be very difficult to self assess for this problem.
Best wishes x -
Pollyanna, that's a very good/interesting idea. And I have a friend, also, who I believe is an OT, I will ask her!!!
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When you think of all the population, possibly during their lifetimes most will suffer with Bad Backs, of some sort.
That will of course include some, some of the time, who need to keep a straight spine, to ease pain, so they stand, or perch on the edge of a table, or find some other makeshift. Or, they are so desperate they just lie on the floor if all else fails.
Most people most of the time will be happy to sit down. But the o.p. does point up the problem that even those with back troubles of their own cannot often comprehend any problem with leaving 'cripples' in a right angle seated position, even for hours on end. -
Well said.
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I too cannot sit down. 30 mins is the most I can sit. So no car journeys beyond that time limit, cinema, long lunches, etc you don’t realise how much not being able to sit affects your life, until you have a sitting issue. So I remain on my feet or lying down. The pain is still there but nothing compared to sitting. It’s like having a burning jagged rock sticking into you bum! Unfortunately other people just don’t get it.
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croxie said:I too cannot sit down. 30 mins is the most I can sit. So no car journeys beyond that time limit, cinema, long lunches, etc you don’t realise how much not being able to sit affects your life, until you have a sitting issue. So I remain on my feet or lying down. The pain is still there but nothing compared to sitting. It’s like having a burning jagged rock sticking into you bum! Unfortunately other people just don’t get it.
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Croxie - EXACTLY! Wish me luck, everyone, new doc today, expert on "Piriformis Syndrome."
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good luck!x
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