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New member with Sitting Disability

Hi everyone!
For nine months now I have been unable to sit without pain that starts at level 5 and gets worse the longer I sit. The condition has stumped an array of Western and Eastern medical professionals. Cortisone injections (four times). MRI of lumbar area doesn't explain the pain. I found an actual Wikipedia page on "Sitting Disability" which basically concludes many of us have it and no one knows how to treat it. Fortunately, I work from home either at a standing desk or a lapdesk I have modified to allow me to type on my Mac Air while lying flat on my back.
I am hoping that here at SCOPE I might find not only support, but maybe some solutions (other than surgery, which has no assurances associated with it). Pain relief, for the time being, is a 50/50 combo of THC and CBD, but that only takes an edge off and obviously doesn't address the core issues, whatever they are.
For nine months now I have been unable to sit without pain that starts at level 5 and gets worse the longer I sit. The condition has stumped an array of Western and Eastern medical professionals. Cortisone injections (four times). MRI of lumbar area doesn't explain the pain. I found an actual Wikipedia page on "Sitting Disability" which basically concludes many of us have it and no one knows how to treat it. Fortunately, I work from home either at a standing desk or a lapdesk I have modified to allow me to type on my Mac Air while lying flat on my back.
I am hoping that here at SCOPE I might find not only support, but maybe some solutions (other than surgery, which has no assurances associated with it). Pain relief, for the time being, is a 50/50 combo of THC and CBD, but that only takes an edge off and obviously doesn't address the core issues, whatever they are.
Replies
Good Evening & Welcome 😃😃
I am one off the Community Champion’s here at Scope.
Yes we have got another member who is in the same situation as you.
I will forward your post onto them & I do hope that this is helpful????
Hi @notebooksandglasses
Can you please help me with this post????
@steve51
Thank you for joining and sharing.
Sorry to hear about your medical condition. You come to the right place for support and information.
I am one of the team of community champions. We guide, advise and help new members who join the community.
Please if we can help with anything . Please ask. Some one will know a member of our team or a member of our community.
Please take care.
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
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Thank you for taking the time to share this with us all. I hope the community will be able to provide support and guidance.
You may find the disability equipment board interesting if you are looking for adaptions.
Please do have a look around the community, get involved, and let me know if there is anything I can do to help!
Scope
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I realise you are still working, but maybe an OT could advise you. It would be very difficult to self assess for this problem.
Best wishes x
That will of course include some, some of the time, who need to keep a straight spine, to ease pain, so they stand, or perch on the edge of a table, or find some other makeshift. Or, they are so desperate they just lie on the floor if all else fails.
Most people most of the time will be happy to sit down. But the o.p. does point up the problem that even those with back troubles of their own cannot often comprehend any problem with leaving 'cripples' in a right angle seated position, even for hours on end.