Neurological conditions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

new opinion

pollyanna1052pollyanna1052 Member Posts: 2,031 Disability Gamechanger
edited October 2019 in Neurological conditions
Hi, this could be a long story, but I`ll try to shorten it...after all it has been 20 years!
When I was 45/46 I began left leg felt like wood..then I had foot drop and stiffness in my legs and spasms in my arms. 

My bladder and bowels were very unpredictable. I had supra pubic catheter fitted.

I was diagnosed with Primary Progressive MS. Within a very short time I became a wheelchair user....

10 yeas later, the MS diagnosis was exchanged to Hereditary Spastic Paraplegia

A few years later I had a genetic test, which was negative. So my HSP label was changed to a big fat ?

I saw 16 neurologists in as many years. No-one could diagnose me!

2 years ago, I was discharged from the neuro department.

I had to accept and just get on with it.

Last week I was given a new chance at being diagnosed.

I`m hoping to get a referral to The Walton Centre in Liverpool. It is the only neuroscience hospital in UK, with top professors and doctors.

Maybe I will get that elusive diagnosis, eh? I am not expecting miracles!


Sign in or join us to comment.