DFG...disabled facilities grant
pollyanna1052
Community member Posts: 2,032 Disability Gamechanger
About 6 years ago, an OT came out and saw my difficulties with the then current bathroom. It was small and pokey. I just about managed when I used a walker, but when I became a wheelchair user, it was impossible!
OT said I definitely needed a wet room..which we sacrificed a spare bedroom for. She fast tracked my need for a Disabled Facilities Grant.
A year later, I rang to ask where I was on the list. I was told number 161!!!!!!! So we arranged a bank loan and agreed to a term of 7 years. So we`re still paying it off.
I have recently been forced to pay towards my care package after 8 years of having nil charges. The charge is £57.22 a week.
In calculating my cost I was told they dont take loans into consideration, even though they know why I had to take it out.
When my hubby asked about this, he was told we should`ve waited for the council to do the work...even though I was unable to use my commode in the bathroom. Imagine how undignified it is to have to `go to the loo` in any other room but the toilet!
The reply to this was `she could`ve had a bed bath!` What about the need to let fresh warm water cleanse my supra pubic catheter.....what about the hair shampooing? What about a pain relieving hot shower? What about dignity?
I despair...I really do. The fight goes on!
OT said I definitely needed a wet room..which we sacrificed a spare bedroom for. She fast tracked my need for a Disabled Facilities Grant.
A year later, I rang to ask where I was on the list. I was told number 161!!!!!!! So we arranged a bank loan and agreed to a term of 7 years. So we`re still paying it off.
I have recently been forced to pay towards my care package after 8 years of having nil charges. The charge is £57.22 a week.
In calculating my cost I was told they dont take loans into consideration, even though they know why I had to take it out.
When my hubby asked about this, he was told we should`ve waited for the council to do the work...even though I was unable to use my commode in the bathroom. Imagine how undignified it is to have to `go to the loo` in any other room but the toilet!
The reply to this was `she could`ve had a bed bath!` What about the need to let fresh warm water cleanse my supra pubic catheter.....what about the hair shampooing? What about a pain relieving hot shower? What about dignity?
I despair...I really do. The fight goes on!
Comments
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I hope this is resolved swiftly in your favor @pollyanna1052!
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Me too @pollyanna1052. A disgraceful way to treat people.Winner of the Scope New Volunteer Award 2019.
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There’s a part of the financial assessment whereby your being charged £57.22 a week where they should offset your disability related expenses, if they are flat refusing to take the loan for adaptions as a DRE, you could try other things to reduce your cost, such as the cost of wheelchair, mobility scooter, mob scooter insurance, the list is endless and you would get a proportion of the outlaid costs
Here are a few examples, not limited to this list.Try & be kind to one another even if we may have different views.
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Thanks all x
Brightness
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