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Issues with PIP decision (mental health)

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  • OverlyAnxious
    OverlyAnxious Community member Posts: 2,616 Disability Gamechanger
    edited October 2019
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    66Mustang said:

    OverlyAnxious - I agree, it is very bizarre you can score more points for going out accompanied, than not going out at all! The only reason I could think of was that PIP is based on how much help you need, and someone who is able to go out with support obviously needs some help whereas someone who is unable to go out at all won’t be getting that help.

    One thing. The report states that they consider my needs based on the majority of days. The thing is my being able to attend this appointment was an absolute one off - not the norm - it took me weeks to get ready to be able to go and I certainly wouldn’t be able to do so on the majority of days. I don’t know how they could say I could do it the majority of days! Not doubting you as I am sure you are right, just seems a bit unfair on their part.

    Thanks again!
    Yeah, that's a fair point, and I wondered that too after posting...but saying that, someone that can't go out would still need the help by having someone do their shopping and collect prescriptions etc.  Although I accept that then isn't 'mobility'...but it also isn't specifically covered by any of the daily living descriptors either.  There must be lots of people with major issues that slip through the gaps in the descriptors. :(

    I completely agree you should've received something for the journey planning from what you've said so far, just not 'e' as it states cannot undertake any journey.  So that specific descriptor would be above the 'majority of days' part due to it's wording I think.  That is just my opinion/perception of the descriptor though.  I can only assume maybe your wording or the assessors understanding was off on the day.

    It was also a complete one-off for me to visit the assessment centre and caused me a lot of problems both before and after. But in my case it doesn't help to have another person there (in fact it makes it worse!) so I have to try and get through everything on my own.  I can't use public transport at all and usually fail anything other than a local grocery shop or river walk out of peak times, but that doesn't fit any of the descriptors because I can drive and do go out alone. :/
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  • 66Mustang
    66Mustang Community member Posts: 13,597 Disability Gamechanger
    edited October 2019
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    Very true about people slipping through the net. The descriptors seem to be aimed at very specific things and if you have a problem that is equally as bad but not what is described you don’t score any points.

    For example (sorry for being graphic) I need someone to clean the toilet thoroughly before I am able to use it. I often urinate in plastic bottles, or in the sink that was installed in my bedroom to assist with my OCD, if there is no one available to clean the bathroom or if I just feel so overwhelmed by OCD that I can’t use the bathroom. However this obviously isn’t listed in the descriptors(!) so I scored no points. I guess the closest thing I could argue for that is that I possibly could say I need prompting to use the toilet (someone tells me to use it instead of unhygienic practices).
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  • Chloe_Scope
    Chloe_Scope Posts: 10,586 Disability Gamechanger
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    Hi @66Mustang, I am glad other members have been able to support you with this. :)

    If you are following the descriptors and other advice then this will show a strong MR letter. Here is some more information that may help: https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/appeals/mandatory-reconsideration/ 
    Scope

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  • 66Mustang
    66Mustang Community member Posts: 13,597 Disability Gamechanger
    edited October 2019
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    Thank you for the post, Chloe.

    Since I last posted on this thread I have seen my GP who knows my situation well. He said it sounds like I shouldn’t have been downgraded and should still be on enhanced care and at least some mobility. He has kindly offered to write a letter to accompany my own MR letter. Although I understand the chance of having the decision changed via MR is only 18%, I am remaining optimistic that this should be seen as strong evidence to support my claim. 

    Thanks again. 
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  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
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    Hi again @66Mustang I'm delighted that you've got a great GP as do I. Mine also knows me well. I do hope his supportive letter helps your claim.

    I also went through an MR & got awarded what I felt was correct & hoped for. Well someone's got to be in that 18% !! I hope you become another happy & positive statistic.
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  • 66Mustang
    66Mustang Community member Posts: 13,597 Disability Gamechanger
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    Thanks very much, chiareids :smile:
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  • OverlyAnxious
    OverlyAnxious Community member Posts: 2,616 Disability Gamechanger
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    66Mustang said:
    Thank you for the post, Chloe.

    Since I last posted on this thread I have seen my GP who knows my situation well. He said it sounds like I shouldn’t have been downgraded and should still be on enhanced care and at least some mobility. He has kindly offered to write a letter to accompany my own MR letter. Although I understand the chance of having the decision changed via MR is only 18%, I am remaining optimistic that this should be seen as strong evidence to support my claim. 

    Thanks again. 
    Did you have any evidence to send for the first part?  If not, you could also use a letter from your parents to help with evidence as it sounds like they know your daily struggles well.
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  • 66Mustang
    66Mustang Community member Posts: 13,597 Disability Gamechanger
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    I did send in letters first off but only ones from a specialist clinic, which is dealing with just a couple of my issues, so they were only really able to explain how those issues affect my daily life - the GP is able to be more general and explain everything so hopefully this additional evidence will help.

    A letter from my parents is a good idea, I hadn’t thought of that at all. Just one question though: I live with my parents - would there be any conflict of interest if I got them to write a letter, as they are obviously going to be on my “side”?

    Thanks
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  • poppy123456
    poppy123456 Community member Posts: 54,006 Disability Gamechanger
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    A letter from your GP isn't the best evidence to send because they usually only know the basics, they very rarely know exactly how your conditions affect you against the PIP descriptors.

    A letter from your parents could be useful for the Tribunal and there's certainly no harm in sending this.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
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  • 66Mustang
    66Mustang Community member Posts: 13,597 Disability Gamechanger
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    Thanks for the post, poppy. I will ask my parents if they will write a letter. 
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  • 66Mustang
    66Mustang Community member Posts: 13,597 Disability Gamechanger
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    I’ve just read the letter from my GP. I am fortunate in that I have a GP who knows me very well and the letter is strongly supportive. He has written very relevant information about how I need assistance with both daily living and when leaving the house. He also stated that he fully supports my own MR letter.

    Is it harmful to send a GP letter or is it OK to go ahead and include this with my own letter and my parents’ letter?

    Many thanks.
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  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
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    I'm sure that Poppy will know that a GP's letter isn't usually the best evidence, but from what you write about your GP & his letter, I would say that in your case (as in mine), it may prove to be very helpful; certainly will do no harm. I would therefore include it with your parents & your own letters.
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  • 66Mustang
    66Mustang Community member Posts: 13,597 Disability Gamechanger
    edited October 2019
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    Thanks very much, chiarieds. I will send them all off ASAP!
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  • OverlyAnxious
    OverlyAnxious Community member Posts: 2,616 Disability Gamechanger
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    Yep, I'd echo the above, sometimes a GP letter isn't helpful for PIP but it sounds like yours is, so I'd definitely send that along with a letter from your parents. :)
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  • Chloe_Scope
    Chloe_Scope Posts: 10,586 Disability Gamechanger
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    Hi @66Mustang, it sounds all very comprehensive to me! A GP letter is seen as poor evidence because a GP rarely knows their patients in that much detail. However, there is nothing wrong with sending a letter from you GP which does in fact highlight how you are affected on a daily basis. :)
    Scope

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  • 66Mustang
    66Mustang Community member Posts: 13,597 Disability Gamechanger
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    Thanks everyone. It sounds like I am fortunate with my GP - I have actually found him more helpful than specialists on several occasions!
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  • 66Mustang
    66Mustang Community member Posts: 13,597 Disability Gamechanger
    edited October 2019
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    I am sort of having second thoughts about asking for a MR. I only scored 8 points for daily living so they would only need to cut this by 1 more point and I would lose all of my benefit, plus the person who cares for me would lose their carer’s allowance.

    However I really feel I should have gotten more than what I was awarded. 

    Is it very common for them to deduct points at the MR stage?
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  • poppy123456
    poppy123456 Community member Posts: 54,006 Disability Gamechanger
    edited October 2019
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    Most MR decisions remain the same but it has been known for people to be awarded more points and lose points after the MR decision. It's impossible to give you any advice on whether there's any risk to your current award, for this you'll need to get some face to face advice.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
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  • herroabii
    herroabii Community member Posts: 20 Connected
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    Sorry just to point out a few mistakes on the mobility
    To score 10 points - cannot undertake any journey
    To score 12 points - cannot undertake any journey Alone
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  • herroabii
    herroabii Community member Posts: 20 Connected
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    Also, my MR a few years ago went from 0 to enhanced rate, so it can happen.☺️
    And sorry seen someone point out what I just posted, it recently changed when they couldn't say " for any reason other than " whatever it used to say.
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