Cerebral Palsy
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Disability talks

Bertie80Bertie80 Member Posts: 7 Listener
Hi I’m Sally,  

I am a new online friend, a bit about me,  I go round schools where I live and give them talks about my disability which is right sided hemiplegia Cerebral Palsy.  I go to Slimming World on a Tuesday morning.  I have been invited to a children in need day and give a talk on the 14 November, the kids have asked me to stay for dinner.  I’m also going round the local air cadets and other organisations to spread the word about disability and we can do anything we want with a bit of help.  If you want any more information about going into schools and do some talks about disability will you let me know and I will give you some advice about it.

Replies

  • emmarenshawemmarenshaw Member Posts: 712 Pioneering
    Hello @Bertie80 welcome to the community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Hi @Bertie80 and a very warm welcome to the community! It sounds like you do an amazing job and I'm sure you'll be educating a lot of children!
    Scope

  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Hi @Bertie80 and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  You are doing brilliant work in giving your disability talks to children.  Well done!  I am sure you find it very rewarding.  I wish you well with it and please let us know how you are getting on.  If there is anything we can help/support you with then please just let us know.  It is great to have you on board! All the best.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • April2018momApril2018mom Posts: 2,869 Member
    That is a good idea @bertie80! Feel free to take a look around and contribute to some discussions. 
  • Bertie80Bertie80 Member Posts: 7 Listener
    I would like to do my talks to other local organisations in Ellesmere Port.  I would like to do talks to big shops like Asda.  I have had some trouble getting some help in Asda to do my shopping.  I have got a carer who does my shopping. I would like to do a talk about disability at my local Asda I have asked whether they would like a talk to the managers and they have said no and they never gave me an answer why.  Can one of you please contact my local Asda and ask for me.  They might say yes with scope involved.  Please will you let me know if you have any success.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Hi @Bertie80, thank you for sharing this with us. I am sorry to hear that you are unable to do your shopping. Unfortunately we are unable to contact ASDA on your behalf. Is this something your carer could help with? I was just wondering what trouble you have had?
    Scope

  • Bertie80Bertie80 Member Posts: 7 Listener
    I have been shouted at by a colleague for taking someone off the shop floor for helping me last year.  I booked for help with my shopping and I was angry at a colleague who knew I had booked someone to go round with me to do my shopping.  My carer gets what I want in heavy things and I get the light things or what she forgets or they do not have the thing in that time.  I have been embarrassed by this situation and I try not to ask for help.  I suffer from a lot of pain in my back.  I have been told by my doctor not to stretch or bend to much.
  • April2018momApril2018mom Posts: 2,869 Member
    @Bertie80 Have you contacted local colleges and universities or not? Talk to the carer. Can she or he help? 
  • Bertie80Bertie80 Member Posts: 7 Listener
    I have not thought of university but I go into my local college.  This is a very good suggestion.  I will get onto the local university and other organisations. I will let you know how I get on.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Sorry to hear this @Bertie80, I imagine this made it a lot more stressful then it needed to be!
    Scope

  • WestHam06WestHam06 Member, Scope Volunteer Posts: 1,333 Pioneering
    Hi @Bertie80
                          Welcome to the community, thank you for joining us. It is brilliant that you are educating children about disability, it is so important, as you have said people with disabilities can do what they would like to do, they just sometimes need a little more help. When I was at school, I used to give talks to my peers about what it is like to live with a disability and how anything can be achieved when you put your mind to it. It also provides a role model for any children who may have disabilities within the school as people with disabilities may not always be represented within the school in terms of both children and adults. Keep going with your talks, you are making a huge difference. Please if there is anything we can help you with just ask, there are many lovely people on the forum who will be able to help. Thank you. 
  • Richard_ScopeRichard_Scope Posts: 2,774

    Scope community team

    Hi @Bertie80 (Sally)
    Good to meet you. I talk about CP and disability all over the country and as @WestHam06 has said I feel it is vitally important for people to hear and see that disabled people are like everybody else. Keep up the great work! If you want to swap notes or techniques let me know :)
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Bertie80Bertie80 Member Posts: 7 Listener
    Hi Richard, it’s Sally here,  I would like some advice on adding more content in my Cerebral Palsy like what I do for pleasure.  I have had my sister give me some advice because I have got a recording of one of my talks on my iPad.  I want to get my word out there.  To parents and grandparents alike.  Have you got any suggestions on how I can do this.  Thank you very much for your support in this subject.  Please can anyone help me.
  • Richard_ScopeRichard_Scope Posts: 2,774

    Scope community team

    Hi @Bertie80
    I think it's important when talking about hobbies, that you try to get across the fact that people living with CP can take part in a huge amount of activities. Speak from your personal experience.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Bertie80Bertie80 Member Posts: 7 Listener
    Thank you that’s what my sister said.  I will have to alter my talk a little bit now.  I appreciate your help and support in this.
  • Richard_ScopeRichard_Scope Posts: 2,774

    Scope community team

    No problem @Bertie80 :)
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • WestHam06WestHam06 Member, Scope Volunteer Posts: 1,333 Pioneering
    Hi @Bertie80
                         You are doing a fantastic job and I think talking from personal experience is the best way to show that people with CP can join in with many activities. I think by doing this people can relate a person to the experience rather than just hearing the words. Keep up the great work! Thank you. 
  • Bertie80Bertie80 Member Posts: 7 Listener
    West Ham 06, 

    I am very proud to go round schools to share my experiences of my life.  I was bullied at school by a teacher and I hear he’s in a wheelchair now, so he knows what it feels like not be able to do anything by himself.  That is not what I wanted to hear.  But he knows what it’s like being disabled now.
  • April2018momApril2018mom Posts: 2,869 Member
    If it makes a difference, consider bringing in a disabled person. Pictures may also help you get your point across to the audience in the classroom too. 
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