Hi, my name is Tommyb92!

Tommyb92
Tommyb92 Online Community Member Posts: 73 Contributor
in Start here and say hello!
Hi Everyone I’m Tom, I have a Shunt and Hydrocephalus and struggle with Short Term Memory issues where as my long term has not been affected from a Shunt Blockage in 2002, I currently Work at GOSH, Which looked after me as a Patient. On top of this I Volunteer my time with a couple of Charities which include Pride in London and Impulse London. I also run a disability group on Twitter and Facebook 

Comments

  • WestHam06
    WestHam06 Online Community Member Posts: 1,390 Trailblazing
    Hi @Tommyb92
                             Welcome to the community, thank you for joining us. 
  • chiarieds
    chiarieds Online Community Member Posts: 17,405 Championing
    Hi @Tommyb92 - Welcome to the community. How lovely to read you're now working at the hospital that looked after you, & you do voluntary work too, etc. I think we're lucky you joined us, & I look forward to your further input.
    I've been to GOSH a few times; the last seeing a geneticist. Later had it confirmed that our family has the hypermobile type of Ehlers-Danlos Syndrome.
  • Tommyb92
    Tommyb92 Online Community Member Posts: 73 Contributor
    I’ve also applied to do a bit of community work with Scope too!
  • chiarieds
    chiarieds Online Community Member Posts: 17,405 Championing
    edited November 2019
    Tom, that's great, thank you. Pretty sure you'll be most welcome. Hope you get to do a lot, rather than just a bit!
  • Adrian_Scope
    Adrian_Scope Posts: 14,295 Online Community Programme Lead
    Great to have you with us @Tommyb92. :smile:
  • Tommyb92
    Tommyb92 Online Community Member Posts: 73 Contributor
    Thank you Adrian :)
  • Tommyb92
    Tommyb92 Online Community Member Posts: 73 Contributor
    chiarieds said:
    Hi @Tommyb92 - Welcome to the community. How lovely to read you're now working at the hospital that looked after you, & you do voluntary work too, etc. I think we're lucky you joined us, & I look forward to your further input.
    I've been to GOSH a few times; the last seeing a geneticist. Later had it confirmed that our family has the hypermobile type of Ehlers-Danlos Syndrome.

    Thank you for your welcome :)
  • thespiceman
    thespiceman Online Community Member Posts: 6,283 Championing
    Hello @Tommyb92   Pleased to meet you.

    Thank you for joining and sharing.

    I am one of the Community Champions team.

    Please can I thank your contributions in everything you do.

    Please look forward to working with you.

    Please ask me anything have a vast wealth of knowledge on disability, mental health addiction plus my foodie stuff.

    Always putting recipes on here and advising members on all the above mentioned.

    Been on here as a volunteer three years this year and done like you lots of volunteering various charities organisations.

    Thank you for all your time.

    Pleasure to meet you.

    @thespiceman
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Tommyb92

    Good Afternoon it’s great to meet you today ?

    I am also one of the Community Champion’s here at Scope.

    Please please let me know if there’s anything that I can help you with???

    @steve51
  • Tommyb92
    Tommyb92 Online Community Member Posts: 73 Contributor
    @thespiceman and @steve51 many thanks for the welcome and I am sure I will be of some use to some people considering I have knowlege of some disabilities and also identifying as LGBT+ :)
  • Tommyb92
    Tommyb92 Online Community Member Posts: 73 Contributor
    I'd love to find out if there are any more people in the group who have a Shunt/Hydrocephalus - I was born with my condition and dont know that many people who have the same condition it would be great to hear their experiences - Tom Community Champion

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