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Phrenic nerve palsy

NiaNia Member Posts: 2 Listener
edited August 2020 in Disabled people
So good to find you guys (despite the circumstances), I came across this forum by chance and after reading your messages I feel confident that I have Phrenic nerve palsy. It gets worse when I lie down and the smallest task gets me winded. I had an emerge visit which tested for Covid-19 (negative), did a chest X-ray (clear) and was sent home. But my misery didn't go away so I went to see my GP. My GP said it was mild Asthma and gave me Breo, when that didn't work he suspected allergies. He is a great doctor and I know he is trying the best he can to help me. I have an appointment tomorrow and I plan to discuss Phrenic nerve palsy with him. I would never have thought of this if I hadn't come across this forum so thank you! I will update after the appointment.
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Replies

  • SranangSranang Member Posts: 2 Listener
    welcome to the site Nia🌸 and all the best with your appointment!
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  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @Sranang

    Good Morning & Welcome it’s great to meet you.

    I am one off the Community Champion’s here at Scope.

    Please please let me know if there’s anything that I can help you with????

    @steve51
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  • Adrian_ScopeAdrian_Scope Testing Team, Community Team Posts: 7,948 Scope community team
    Good luck at your appointment @Nia. I hope your doctor is able to help you and can look into phrenic nerve palsy as a possibility. Please let us know how you get on. :)
    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
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  • janer1967janer1967 Community champion Posts: 7,434 Disability Gamechanger
    Hi @nia Welcome to the community its great to have you on board and really pleased you found us here and have found some information useful to you.

    Good luck with the appointment
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  • NiaNia Member Posts: 2 Listener
    Thank you so much everyone for the warm welcome. I apologize for not posting sooner, the last few days (including today) have been quite difficult in terms of breathing. My GP confirmed that I had Phrenic nerve damage which is causing some degree of diaphragmatic paralysis. He thinks/hope's it's temporary and should go away once the respiratory infection goes away. Fingers crossed. Has anyone recovered from this, and what was your process for improving breathing? I can now see how it affects quality of life😢. Thank you all
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