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mollypeppa
Community member Posts: 42 Connected
This is quite long, and have had mixed information from Internet, and also what's going on with the virus. If anyone can help.
In 2016 I transferred from dla ti pip, I only got 11 points care no mobility, I was reviewed in August 2018, and no face to face, for second time, was awarded enhanced on both, with a review to take place after 27th May 2020, enhance was backdated to August 2018 on both components, then in March last year I was awarded a few thousand pounds because of the mobility ruling for mental health, this was from November 2016 to August 2018,I remember the first review form in 2016, bang on date as its 12 months before an award ends, the gov says all reviews, reassessments and face to face are on hold until middle of June, probably why I've not had the form, I think I read a few month ago that reviews are being done six months before an award ends and not 12, my award was done on 27 November 2018,so I unsure if it will be November or as soon as they are confident sending review forms out, also is it true that the points description has changed from two points to one for using aids? If so a lot of people will lose out,
Secondly, I was diagnosed with osteoarthritis in my left hip in June last year, I had physio but not much good, then in February this year, I had been diagnosed with osteoarthritis in my right hip, doctor said it strange within six months, it was referred straight to county council occupational therapy, wife send pics, of the house,
The back step has been repaired but a bit high up, two rails will go in soon, I have grab rails on toilet, the bath, a shower board, bed rail, an extra stair rail fitted, I also have a shoe horn, a picker grabber,also a urinal bottle for in the night, sock puller which is annoying, all provided by occupational therapy, and telecare alarm going in on Monday with a fob and keysafe, I use a walking stick in house, but when out I use special designed arthritic crutches, things are getting hard, I struggle on days with slightest thing, I also have hidradentitis Suppurativa a rare skin condition which is not nice, and need help to dress ect when it flares up, this is more so now as to arthritis, I would not wish this on anyone, I'm 42, male, I am getting referred to bone specialist nertxt week, by gp, I can't have hip replacement till I'm 50, as the law states, I already have depression with psychotic episodes, the other week I thought, no hips equals wheelchair, then was gonna topp myself. I am married so my wife helps,
What constitute an aid? A bed rail to dwp is not an aid, not sure of outside rails ect. I'm pretty sure an aid which has Been provided by NHS or occupational therapy will constitute an aid, rather than someone buying them for the necessity of just using them, for convenience. As for the crutches, occupational therapy asked if I had walking aids which I explained as they do not provide them, I explained what I had, perfect, she said.
I am under the care of the cmht and waiting for a care coordinator since Jan,because of past childhood trauma, I am on medication, same medicine since my last pip revirws so nothing changed apart from the psychosis I was diagnosed with in December last year, and the arthritis, I have asthma too, and various other things, not too serious though. I cannot walk from front door to back garden with or without an aid as of uneven ground, gp said in Feb, 3,6,12 months, not decades, seems like a rapid form of arthritis but I've not been told officially,
it's strange why it got referred to occupational therapy first and not a specialist first. Cooking is a pain because of balance, I've not got a perch stool from occupational therapy as I explained my wife cooks but I do try to help, I can't use knives because of the trauma I suffered as a child and a teenager, and have suicidal ideation at times when in the kitchen, and meds I'm on distort my thinking, and concentration, quetiepine, mirtazapine, others too, I feel like I'm useless and it's gonna get worse, gp in Feb was going to give me opiods but didn't as to medication I'm already on, is osteoarthritis of both hips a medical condition for dwp? I know it's about how it affects you, I have the xray results, and other proof, mental health ect
In 2016 I transferred from dla ti pip, I only got 11 points care no mobility, I was reviewed in August 2018, and no face to face, for second time, was awarded enhanced on both, with a review to take place after 27th May 2020, enhance was backdated to August 2018 on both components, then in March last year I was awarded a few thousand pounds because of the mobility ruling for mental health, this was from November 2016 to August 2018,I remember the first review form in 2016, bang on date as its 12 months before an award ends, the gov says all reviews, reassessments and face to face are on hold until middle of June, probably why I've not had the form, I think I read a few month ago that reviews are being done six months before an award ends and not 12, my award was done on 27 November 2018,so I unsure if it will be November or as soon as they are confident sending review forms out, also is it true that the points description has changed from two points to one for using aids? If so a lot of people will lose out,
Secondly, I was diagnosed with osteoarthritis in my left hip in June last year, I had physio but not much good, then in February this year, I had been diagnosed with osteoarthritis in my right hip, doctor said it strange within six months, it was referred straight to county council occupational therapy, wife send pics, of the house,
The back step has been repaired but a bit high up, two rails will go in soon, I have grab rails on toilet, the bath, a shower board, bed rail, an extra stair rail fitted, I also have a shoe horn, a picker grabber,also a urinal bottle for in the night, sock puller which is annoying, all provided by occupational therapy, and telecare alarm going in on Monday with a fob and keysafe, I use a walking stick in house, but when out I use special designed arthritic crutches, things are getting hard, I struggle on days with slightest thing, I also have hidradentitis Suppurativa a rare skin condition which is not nice, and need help to dress ect when it flares up, this is more so now as to arthritis, I would not wish this on anyone, I'm 42, male, I am getting referred to bone specialist nertxt week, by gp, I can't have hip replacement till I'm 50, as the law states, I already have depression with psychotic episodes, the other week I thought, no hips equals wheelchair, then was gonna topp myself. I am married so my wife helps,
What constitute an aid? A bed rail to dwp is not an aid, not sure of outside rails ect. I'm pretty sure an aid which has Been provided by NHS or occupational therapy will constitute an aid, rather than someone buying them for the necessity of just using them, for convenience. As for the crutches, occupational therapy asked if I had walking aids which I explained as they do not provide them, I explained what I had, perfect, she said.
I am under the care of the cmht and waiting for a care coordinator since Jan,because of past childhood trauma, I am on medication, same medicine since my last pip revirws so nothing changed apart from the psychosis I was diagnosed with in December last year, and the arthritis, I have asthma too, and various other things, not too serious though. I cannot walk from front door to back garden with or without an aid as of uneven ground, gp said in Feb, 3,6,12 months, not decades, seems like a rapid form of arthritis but I've not been told officially,
it's strange why it got referred to occupational therapy first and not a specialist first. Cooking is a pain because of balance, I've not got a perch stool from occupational therapy as I explained my wife cooks but I do try to help, I can't use knives because of the trauma I suffered as a child and a teenager, and have suicidal ideation at times when in the kitchen, and meds I'm on distort my thinking, and concentration, quetiepine, mirtazapine, others too, I feel like I'm useless and it's gonna get worse, gp in Feb was going to give me opiods but didn't as to medication I'm already on, is osteoarthritis of both hips a medical condition for dwp? I know it's about how it affects you, I have the xray results, and other proof, mental health ect
Comments
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Hi @mollypeppa Welcome to the community
I can clarify review forms are sent out 6 months prior to the award ending but currently they are on hold till October at least. If an award is due to end during this time before assessment has been done then the award is being extended by 6 months.
I cant comment too much on your other points but I got points for some aids like bath lift, walking frame, perching stool, magnifying glass
It isn't about a diagnosis it is about how your condition affects your daily living and how you are able to complete the tasks or not.
I hope others will be able to give you more advice
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janer1967 said:Hi @mollypeppa Welcome to the community
I can clarify review forms are sent out 6 months prior to the award ending but currently they are on hold till October at least. If an award is due to end during this time before assessment has been done then the award is being extended by 6 months.
I cant comment too much on your other points but I got points for some aids like bath lift, walking frame, perching stool, magnifying glass
It isn't about a diagnosis it is about how your condition affects your daily living and how you are able to complete the tasks or not.
I hope others will be able to give you more advice -
It is die to avoid assessments not taking place
They dont write to tell you about it changing to 6 months my review was last year and I got mine 6 months b4 which is about the time it changed I was first awarded in 2017
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Thank you, few months rest then, in that time I can get the much needed help for this arthritis and other things, than filling forms out and having to prove an illness, stay safe and well, I'll keep updated if anything does come through post, shouldn't do.
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best of luck @mollypeppa i can understand how anxious you must be, the form filling is stressful to say the least. this rain, although relaxing when you are in bed trying to sleep, is awful for arthritis, dont give up, keep safe
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