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Hi, my name is Betty200!
Betty200
Member Posts: 9 Connected
Hi I’m new to scope, and I’m starting the journey towards my daughter getting a diagnosis for ASD, sensory processing disorder and dyspraxia.
Replies
Good Evening & Welcome 😃😃
l am one of the Community Champion’s here at Scope.
We have got some info for you below on “families with disabled children”
https://www.scope.org.uk/advice-and-support/families-with-disabled-children/
@steve51
thank you, I will check it out, just trying to figure out my way round I’m not used to things like this so thank youxx
Yes I can help you with this 😄😃
This is part of our current role’s as “Community Champions”
Please please come back to me!!!!!!
@steve51
my daughter is 7.
i have heard of them I was just looking at their website regarding pda. But I will have a good look.
not so well obviously with lockdown she seems to be getting worse and I really don’t know how to help her..
she hasn’t been diagnosed with anything but I brought this up with her teacher in sept 2019 and nothing has been done I went to the gp and he told me It wasn’t his job it’s schools so I’ve been a bit lost I managed to speak with the headteacher which has been really hard to get hold of her and she said she would put an early help in place (4weeks ago ) I also spoke to a community nurse who also contacted the school and told me they would get aspire to contact me ... I haven’t heard anything off anyone yet so I’m feeling a bit alone and frustrated at the min xx
im really struggling with her and I also have an 18month old and find it very hard work with them both especially since lockdown my husband does help but he doesn’t really understand autism and he kind of leaves it to me ..
sorry for the rant xx
Good Morning I hope you are okay 😄😃
Please please don’t worry about the rant as that is what we are all here for.
Have you found the info any good?????
Do you need any further help/support/advice???
Please please let me know if there’s anything that I can provide you?????
@steve51
thank you both so much for listening sometimes it feels good to get it off your chest especially when someone is actually listening and trying to support me instead of trying to make up excuses of why I’m overreacting
I have signed up for the navigate yesterday and I had a call today which I missed as I had to go into work but she is going to phone me again later ..
I really appreciate you both taking the time to listen and respond to me thank you I don’t know why I didn’t do this sooner xx
You are very very welcome my friend.
Yes it’s always good to get things off your chest.
That’s part of our role to listen/support/advice.
I am here every day /evening so you can access me as & when required.
@steve51
thank you both again .. I’ve had a call today from someone at navigate and she has kindly put me on the list for me to have a call for support advice every week.. she’s also given me some information to help with my daughter..
im can’t tell you how happy I am for this page and sight it’s been amazing
Excellent news I am so pleased for you both 😃
Please come back to me at any point😃
@steve51