Recently diagnosed with mayasthenia
hondon
Community member Posts: 1 Listener
I have recently been diagnosed with mayasthenia. I am 75 years old. I would like to hear about other peoples experiences.
Comments
-
Hi @hondon just wanted to say welcome to the community ?
“This is my simple religion. No need for temples. No need for complicated philosophy. Your own mind, your own heart is the temple. Your philosophy is simple kindness.”
― Dalai Lama XIV -
Hi @hondon - & welcome to the community. We have one person that I am aware of who is waiting for testing for Myasthenia gravis (MG). I'm not sure if they're active at the moment tho. If @Funboy1 is around he may get in touch.Meanwhile I wonder if you have looked at a MG support website. There is the following: https://www.myaware.org/Please look around the forum & join in with any discussions (there are links at the top of this page) as well as chat here any time.
-
Hi @hondon Welcome to the community from me too, glad you have joined us and hope you find others who can relate
I look forward to seeing you around -
-
-
Hi hondon, I understand your concerns about being diagnosed with a rare condition. Hopefully you will garner more information here and from the doctors treating you.
Your post has brought back happy memories for me. In the late 1990s I worked briefly as a research assistant to Professor John Newsom Davis, who was a wonderful man and led research into Myasthenia Gravis in Oxford. I remember that some of the patients had their thymus glands removed but I don't know whether this procedure is still done.
I am assuming that you are now on medication?
Wishing you all the best in managing your condition. -
In my oponion I would say total rest get as much as possible in the early stages let the meds do the work for you m8
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 482 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 230 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 806 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 845 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 886 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions