Has anyone experienced PAs or agencies in caring for a child with physical and mental disabilities?
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SallyDavis
Community member Posts: 12 Listener
Hi my name s Sally I recently started caring for my cousin as a relative passed away it seems alot to understand but it helps reading about your experiences with pa or agency thankyou
Comments
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Hello sally how are you this evening ? Welcome to the forum xx
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Hello fine thankyou
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Hi @SallyDavis
Good Evening it’s great to see today.
I am one of the Community Champion’s here at Scope.
Please let me know if there’s anything that I can help you with???
@steve51 -
Hi @SallyDavis - & welcome to the community, Sally. It's lovely that you have taken on caring for your cousin. Is it OK to ask what their problems are? Perhaps then you might get applicable advice.
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My cousin was starved of oxygen at birth so she is very physically and mentally disabled
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Hi @SallyDavis
I am very very sorry to hear about that?
Is there any help/support that I can offer you ?
@steve51 -
At the moment getting all sorts of things in place as she never has had any assessments or any support at all she is greiving the loss of her mum who cared for her all her life but I am finding it very challenging at times ?
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Hi @SallyDavis
How are you coping with everything that needs to be in place.
Are you looking at having her accessed?
Now you have reached out to us we will all offer you both Help/Support.
@steve51 -
Yes she has been accessed
but it's all very new too me -
Hi @SallyDavis
That’s good news.
Please please let me know if there’s anything that I can offer you???
@steve51
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Well to be honest ear muffs would be good as my cousin is constantly grinding her teeth
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Yes I had the same problem with grinding my teeth after my Stroke but I was never asked to get any ear muffs.
I had to have a rubber mould made to wear at nighttime to stop the grinding.
@steve51 -
Maybe I could get one for my cousin
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Hi again @SallyDavis - thank you very much for replying, tho I'm sorry to read how profoundly your cousin is affected. There's some info here on Scope that may be helpful.Please see: https://www.scope.org.uk/advice-and-support/preparing-for-carers-assessment/ as you mention PA or an agency.Within that link you will also find a link to 'carersUK' (https://www.carersuk.org/) which may prove helpful, as you also need support in helping your cousin, Sally.It certainly is a lot to take onboard at once; she's grieving her Mum, & this is all new to you, so hope some of this info will help.Please do ask any questions about any difficulties you're facing, (I see Steve has already advised), & anything else you need to know. Please let us know how you're getting on, & chat here any time.
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Hi @SallyDavis, just wanted to reach out and see if there is anything else we can do to help.
Can I just clarify, was it a needs assessment which your cousin had? You also would be entitled to a carers assessment if you would be supporting her.
I imagine this is a big change for you both and cannot be easy. I hope the community can support you both.Scope -
Hi @SallyDavis Welcome t o the community, it must be a very challenging time for you and your cousin and you are doing the very best you can in a difficult time.
Pleaser ask any questions you have we are here to support and guide you to the best places we always have somebody who knows the answer or where to find it
Take care and I wish you the best
Brightness
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