Cerebral Palsy
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Holistic assessment of my wellbeing - CP

ChaCha Member Posts: 1 Listener
edited April 9 in Cerebral Palsy
I live independently in Northamptonshire with CP, I am retired. I walk with a walker but slowing down and have just had an operation on my lower calf to remove a benign tumour. I would really like to see a CP specialist who could give me a holistic assessment of my wellbeing as my GP surgery tend to look at me through a CP prism. I'm losing some function in my right arm and hand. I want to know if I can improve or stabilise things as I want to continue living independently or if I should accept that it is general deterioration. Can anyone recommend someone who can give me guidance? Thank you 


  • Ami2301Ami2301 Community Co-Production Group Posts: 7,912 Disability Gamechanger
    Hi @Cha welcome to the community!

    @Richard_Scope do you have any suggestions? :)
    Disability Gamechanger - 2019
  • Richard_ScopeRichard_Scope Posts: 2,889

    Scope community team

    edited October 2018
    Hi @Cha
    A very warm welcome to the community and good to meet you. Unfortunately and annoyingly there are no CP specialists in the U.K. People like us with Cerebral Palsy tend to experience physiological burnout quicker than our non-CP peers due to the stresses and strains that we place on our bodies just performing the simplest of tasks.
    I have the same experience when talking to GPs. It very important that we express what is different from our daily lived experience of CP.
    Staying as active as possible can help to stabilise things for you. I would ask your GP for a referral to a physiotherapist and hydrotherapist
    I have found a local pool in your area that you might want to take a look at?
    There is no quick fix to the changes that we see as we get older but there are lots of ways we can keep active and as independent as possible.

    We also have a very useful discussion about ways that people manage their CP.

    Keep in touch.

    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • Veronica82Veronica82 Member Posts: 3 Listener
    Conductive Education is  "wholistic" approach to rehabilitation for people with motor disorders. It's been amazing for my son so I just completed a degree in it so I can work with families across all ages.
    It's fabulous 
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