Struggling a bit today

Beanie71 · September 2020

Hi All
Struggling a bit today

6 weeks in to taking Methotrexate and week 4 of Steroids, pain has eased somewhat but at the moment I'm struggling with a lot of aching in my hips and ankles and overall fatigue, feel I have no energy for anything and when i do try it totally knocks me the following day, am i expecting to much to soon ?

I've another consultant appointment this week and was wondering if i need anything else adding xx

vikingqueen · September 2020

Methotrexate can take up to 12 weeks before you see a difference so try and bear with it, the fatigue is another kettle of fish. I still struggle some days and i am 3 years in taking methotrexate, it affects people in different ways.
Let your consultant know everything you have written on here plus anything else you have worries over, that is what they are there for. Try speaking to your doctor as well, you may need painkillers in addition to the steroids.

woodbine · September 2020

Hi @Beanie71 sorry you are struggling hope the meds eventually kick in and do the job

Beanie71 · September 2020

Thank you @vikingqueen @woodbine
I will have a chat with my GP & Consultant

vikingqueen · September 2020

Hope you are feeling better soon

Beanie71 · September 2020

Thank you x

Ross_Alumni · September 2020

Good luck with the upcoming appointment @Beanie71.

janer1967 · September 2020

Hi @Beanie71 Sorry to hear you are struggling and hope the meds soon kick in, hopefully you can get some advice at your appointment good luck fingers crossed for you

Beanie71 · September 2020

@janer1967 Thank you x

Chloe_Scope · September 2020

Hi @Beanie71, just wanted to check in to see how you were doing.

Beanie71 · September 2020

Hi @Chloe_Scope

Thank you for your message, feel a bit brighter this morning

Hope your keeping well xx

Chloe_Scope · September 2020

Glad to hear that @Beanie71! Wishing you a lovely day.

vikingqueen · September 2020

Good morning @Beanie71, did you get to see, or speak to your consultant this week? I hope you are feeling better than you did x

Beanie71 · September 2020

Hi @vikingqueen
I spoke to a consultant on Thursday, unfortunately it wasn't my usual Lady, I waited an hour and half before he called and he didn't even apologise which I thought was rather rude, but hey....... No change with the Meds, 20mg Methotrexate once a week and the usual anti-inflammatory med and pain killers, still suffering with the aching hips and ankles which is draining.
Some days can be a real struggle but we have to put a brave face on don't we.
How are you doing x

vikingqueen · September 2020

I'm doing ok thank you, i have a brilliant rheumy team who i can call anytime, not sure i would tolerate my consultant being rude, i would have to say something..
If you are still struggling with pain speak to your doctor, you might need different pain killers, it took a while to get mine right but touch wood all is good for now.
learn to rest when you need to, your body will tell you when it's had enough, nothing wrong with an afternoon nap if you can

Beanie71 · September 2020

Thank you @vikingqueen
I've a great relationship with my GP so she is giving me a lot of support thank goodness.

xx

Tori_Scope · October 2020

It's really great that you have such a good relationship with your GP @Beanie71

How are you getting on now? Any change?

Beanie71 · October 2020

Hi @Tori_Scope

Hips and feet still aching a lot, cannot do a great deal without them aching afterwards, fatigue too but still going
How are you doing ? x

Tori_Scope · October 2020

I'm sorry to hear that @Beanie71

Do you think there's anything else your health team could do to help you manage the pain?

I'm fine, thank you for asking

Busy day!

Beanie71 · October 2020

Im going to give them a call tomorrow and see.
Thank you x

Tori_Scope · October 2020

I hope the call goes well today @Beanie71

Struggling a bit today

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