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PIP Telephone assessment

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Comments

  • poppy123456
    poppy123456 Community member Posts: 53,333 Disability Gamechanger
    Your award has been extended by 6 months because of Covid, in an other times then it would have already ended. If the decision isn't made by the time your end date arrives then yes it will end. If you're awarded once the decision is made then any money owed will be backdated to the date it stopped.

    If anything Covid is to blame, people working from home, getting sick and not being able to work at all. All of this causes more delays.

    You have just over 10 weeks left, that's plently of time to have the assessment and for a decision to be made.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • giddeon
    giddeon Community member Posts: 15 Listener
    Hi all another update:  I still hadn’t received a telephone assessment date and had an appointment with my support worker this morning who rang IAS and she was given an appointment for this Friday morning, I can’t understand why if apps are readily available and they knew the process was causing me severe distress that they hadn’t given one before.  Her colleague (the welfare advisor/benefits specialist or whatever he is) is going to be on the call with me and is phoning me tomorrow to speak to me & about my fears.  It’s taken over my head at this point and I’m struggling terribly can’t eat or sleep and read horror stories/bad experiences all the time.  I’m incredibly anxious but glad that at least the horrible call will be out of the way soon.  I will come back and let you know more when I’m able.
  • poppy123456
    poppy123456 Community member Posts: 53,333 Disability Gamechanger
    There may have just been an appointment become available on the day that your support worker rang them, which is quite possible if someone canceled one.

    I'm sorry it's affecting your health, all these reviews affect everyone the same way unfortunately. Good luck for the assessment and do let us know the outcome.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • giddeon
    giddeon Community member Posts: 15 Listener
    It was earlier today and I think there were multiple apps available, as it was tied in to when I could be supported by a professional.. Thanks 
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
    Hi @giddeon

    I'm glad you have a date quite soon for the PIP assessment and completely understand the anxiety its bringing on.  It's good you have someone to support you with it so make sure to lean on them and make them completely aware of all your worries.  

    We are here too if ever you need someone to vent to so please don't be afraid to give us a shout.  I'll have everything crossed for you.
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  • giddeon
    giddeon Community member Posts: 15 Listener
    Thanks @Cher_Scope I appreciate it.  I spoke to the welfare guy this morning and his concern which he’s been told by my support worker is that I’m prone to trying to give the impression I’m more well than I am.  I tried to explain to him that I obviously want to keep getting PIP but that I just want the award to be correct as if I got more points than I feel I deserve I would then be overwhelmed with worry about that! which was the reason I notified DWP that my physical health & mobility had improved & that I shouldn’t be getting any points for moving around back in 2018.  The paper reassessment that followed removed a lot of points from my daily living most of which were in my opinion incorrect. I just want it to be right.  

    Because I don’t have copies of the forms I’ve to do a bullet list for each question to prepare which I’d tried to do yesterday off my own back but failed I got so overwhelmed and upset.  @poppy123456 was right and he doesn’t normally support during assessment but is doing and says the assessor knows and will add him to the call.  He says he normally deals with tribunals.  Thanks and I will let you know how things go.
  • poppy123456
    poppy123456 Community member Posts: 53,333 Disability Gamechanger
    I think a lot of people give the impression they are more well than they really are. It's called "putting on a brave face" They say that no one knows what goes on behind closed doors and how true that is too.

    The advice you were given about doing the vullet list isn't the advice i would have given because during the assessment i would personally find it very difficult to look at the list and answer the questions. You don't know exactly what questions they will ask you and it's almost impossible to predict what they will be.

    For PIP what alot of people forget is, it's how your conditions affect you over a 12 month period. You may have a couple of weeks where you're feeling "ok" but this doesn't mean you are and it certainly doesn't mean you should ring and report changes in your condition. You should always get further advice before reporting changes regardless of whether you think you're worse or even just a little better because it doens't mean you're not entitled to PIP or even entitled to more points for a higher award.

    When waiting for an assessment the worst thing anyone can do is read all the negative stories on any internet forum.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • giddeon
    giddeon Community member Posts: 15 Listener
    edited September 2020
    @poppy123456 I was receiving 10 points for being able to walk 20-50m and I’d lost 7 stone in weight after coming off anti-psychotics, was dealing with my FM much better & was regularly walking more than that.  I believe not notifying them would be dishonest and it was worrying me.  I wasn’t going to revert back to being 21 stone & unable to move any time soon unless force over medicated again.

    i appreciate you taking time to respond but is that just for your post numbers and Scope awards?  What advice are you offering? That I go into the assessment blind in panic & crisis?  Telling me not to read obsessively and worry sick is akin to telling me to to ‘get over’ my mental health problems which are the reason I’m on benefits in the first place. It’s like saying the last thing someone should be doing is Removed by moderator. You should just stop.. I didn’t choose this life & know my behaviour is often not the best for me but it is my illness that causes it.  Thanks anyway 
  • poppy123456
    poppy123456 Community member Posts: 53,333 Disability Gamechanger
    I find your comment very rude. I live with my daughter 24/7 and she has mental health problems and Autism. I never once advised you to "get over" your mental health problems, i was never once rude to you in any way, shape or form, i was purely trying to help and advise you.

    It's a fact that reading other peoples negative stories on any internet forum will only cause someone even more distress than they already have when going through any review.

    I'm not trying to increase my posts or awards here on scope. I'm here to help others, which i why i choose to spend my time here. I'm sorry you thought any different. I will not be responding to anymore of your comments but i wish you good luck with your assessment.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    edited September 2020
    Afternoon

    Just a friendly reminder to stay mindful and respectful of other people's thoughts and intentions. 

    These topics can be hard to talk about and can cause stress, I very much understand that. I'm sure everybody who posts offering their experience and advice does so with the best motivations.

    I hope this community can continue to support you @giddeon and that you find it a useful place.

    And @poppy123456 thank you for offering your input, as ever.

    Hope everyone has a lovely afternoon and evening.
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