Hi, my name is charms!
Options
charms
Community member Posts: 7 Listener
Hi I am new I have 2 children with needs one with asd and anxiety one with epilepsy and gobel development delay and behaviour issues also speech problems both with sensory needs.
Tagged:
Comments
-
Hi @charms welcome on board glad you have joined
You might want to look in our parents and carers section or parents of disabled children
I am sure it must be a challenge for you and hope we can be of support -
Thank you I will look at it to
-
Hi @charms - & welcome to this friendly & supportive community. How are you coping just now?
-
Hello @charms and welcome to the community
Online Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
@chiarieds seem to be having more bad days hard when not go much support from family or friends miss groups and getting away from it all for a bit hows you?
-
@Ross_Scope thank you ?
-
Hi @charms - I'm not too bad, thank you for asking. I'm very sorry to read you don't have much support from your family & friends. This pandemic is certainly affecting everyone's lives unfortunately, just when we need the help of others the most. Please know you can chat here any time, as there's usually someone about. I'm also hoping that some of the info Scope has on having disabled children may help. Please see: https://www.scope.org.uk/advice-and-support/families-with-disabled-children/ Please have a look through. Have your children been diagnosed in the past year?Also have you had a look at the National Autistic Society? They may also be able to help. Please see: https://www.autism.org.uk/Have you had any help from a Speech & Language Therapist?I hope you don't mind the questions..... just trying to think what would help your family.
-
@chiarieds yes we use to get a lot of support from friends and family and groups but most has stopped the baby well 2 and half has lots in place and we are under are local austim team but most help is online at the moment. Starting to miss face to face groups the big girl is going through her asd assessment and we have not had much support for her and she has being finding lockdown hard.
-
Hi @charms - Thank you for replying. In the Scope link I gave, there's a mention of Scope's 'Navigate' programme. This is for parents whose child has been recently diagnosed, or going through an assessment. It gives you emotional support, which will also hopefully then help you. I'm sorry your daughter is finding lockdown hard, as many do. Anyway, please now specifically look at Scope's 'Navigate' programme as I've heard really positive responses from parents about it. Please see: https://www.scope.org.uk/family-services/navigate/
-
Hello and welcome to the community @charms! I hope the above resources have been useful. I'd also recommend getting in touch with Navigate if you can
-
I am in touch with them thanks
-
That's great news @charms - I hope you find the programme very helpful. Please let us all know how you get on, & do please chat here any time you wish.
-
Hi Charms my name is Masuma
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions