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Thankful Thursday's

Tammyjane33Tammyjane33 Member Posts: 670 Pioneering
in Coffee lounge
What are you thankful for?
I'm thankful for a warm home, acsess to books and education
Thankful for food in my cupboards
Thankful for medication to help the pain of my condition.
Comment what you are thankful for below 👇
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Replies

  • OxonladyOxonlady Member Posts: 392 Pioneering
    Hi @Tammyjane33, please could you kindly let me know what medication you are taking for pain? I am in severe pain and can't sleep. I've tried lots of different medications but they either don't work or cause allergic reactions. I'm at my wit's end... Thanks. 
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    I am thankful for my son him being born saved me in so many ways and I’m even more thankful we have overcome so much together. I am also thankful for my mum and partner who do there best to support us. And for sure I am thankful for this forum for the support and space to chat and discuss problems. ❤️
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  • Ross_ScopeRoss_Scope Posts: 3,542

    Scope community team
    I'm thankful for Yorkshire tea, always :) 
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  • 66Mustang66Mustang Community Co-Production Group Posts: 4,838 Disability Gamechanger
    I was actually talking about this yesterday - we were discussing things we take for granted.

    I’m thankful for the fact that people are able to moan about things like FaceBook being down. Life must be pretty good on the whole if something that insignificant causes problems. Yes we might not be able to tweet a picture of our lunch but at least we have food in our belly, a warm house, are not being sent off to fight a war, etc. :)
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  • Cher_ScopeCher_Scope Posts: 3,709

    Scope community team
    I'm thankful for my friends, family and pets, Colin the caterpillar and having a job.

    But most of all I'm thankful for my health.  My illness is in remission and so I never take it for granted how lucky I am to be able to do the everyday things that once felt like they were unattainable  <3
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  • leeCalleeCal Member Posts: 3,487 Disability Gamechanger
    Well, so it’s Wednesday but ...

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  • janer1967janer1967 Member Posts: 10,049 Disability Gamechanger
    I am thankful for being alive and bringing life to my son and for family and friends that support us
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    *** 
    I am also thankful I have won £5 from scope lottery today 😊 #givingforbettercause 
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  • Cher_ScopeCher_Scope Posts: 3,709

    Scope community team
    What a joyous thread <3 and woop woop @earthchild23 well done!!
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  • Tammyjane33Tammyjane33 Member Posts: 670 Pioneering
    Oxonlady said:
    Hi @Tammyjane33, please could you kindly let me know what medication you are taking for pain? I am in severe pain and can't sleep. I've tried lots of different medications but they either don't work or cause allergic reactions. I'm at my wit's end... Thanks. 
    @Oxonlady I. I so sorry to hear that, it understand how horrible it can make you feel both physically and mentally. 
    I have a rare disease which has developed into chronic pain, as my body works differently to others I was on high doses which made me very unwell, have you spoken to a GP about your pain? I'm on lots mainly Amitriptyline 
    Gabapentin
    Steriods for inflammation and an Immunosuppressants
    As I said above this is for a rare disease so I don't know how they'd work for other people hope this helps. I would definitely contact my doctor 
    ❤️
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  • Tammyjane33Tammyjane33 Member Posts: 670 Pioneering
    Thankyou @Cher_Scope 😊
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  • Tammyjane33Tammyjane33 Member Posts: 670 Pioneering
    @earthchild23 that's great news! well done. 
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    Yes thank you I’m happy to have signed up just to give back as you support so many of us on here and this forum is a blessing your are angels 
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  • Tammyjane33Tammyjane33 Member Posts: 670 Pioneering
    @janer1967 aww that's a lovely answer. You are both very blessed to have one another, having a supportive network around you is brilliant. 
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  • 66Mustang66Mustang Community Co-Production Group Posts: 4,838 Disability Gamechanger
    Congratulations on winning £5. I would love to do the Scope lottery but can’t commit to £1 a week at the moment as thats 50 quid a year. I will remember Scope once I get into employment though :)
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  • janer1967janer1967 Member Posts: 10,049 Disability Gamechanger
    @earthchild23 snap I have also won £5 on the lottery today maybe it's a sign to have a go on big lottery 
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  • OxonladyOxonlady Member Posts: 392 Pioneering
    [email protected], GPs aren't very interested! I've tried a wide variety of different pain killers over the years, including some of the ones you mention but nothing helps much so from that point of view my body must respond differently from other people's! I've been on steroids for over 15 years and I have put on over 8 stones. I have reacted badly to steroids in terms of weight gain but I can't come off them now or I would die. I'm barely mobile due to spinal and other problems so I can't seem to be able to lose weight.
    During my better times I get on with various activities to distract me from my conditions. So sorry to everyone on this Forum, I'm not normally moaning, just when the pain gets unbearable... 

    I'm grateful I've got my lovely cat, Lancelot, to keep me company! 
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  • Cher_ScopeCher_Scope Posts: 3,709

    Scope community team
    @janer1967 oooh well done!! we are on a bit of a roll on the community today!

    @Oxonlady No need to apologise.  We understand that to have chronic pain must be difficult.  I really feel for you and wish I could wave a magic wand.  

    I know you mentioned before that gentle massage might help you.  I'm wondering out loud, but is it worth asking your GP about referral to a physiotherapy service, where they could visit you in your home to do this?  Maybe that could be something to explore.

    Bless little Lancelot!! My cats say hello to him :)
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  • earthchild23earthchild23 Member Posts: 145 Pioneering
    @66Mustang I understand well I’m playing on behalf of us all and I’ve said if I do ever get a big win I’d split it on a few charities. 😊

    @janer1967 yes go for it and good luck 🤞 definitely a sign I’d say.
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  • 66Mustang66Mustang Community Co-Production Group Posts: 4,838 Disability Gamechanger
    @earthchild23 that is an awesome idea to split it between some charities if you get a big win :smiley:
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  • woodbinewoodbine Community Co-Production Group Posts: 4,084 Disability Gamechanger
    I'm thankful that I am gaining the wisdom to know when I am wrong, its only taken me 61 years.
    "Putting a child into care, isn't caring for a child" (T.Rhattigan)
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  • Tammyjane33Tammyjane33 Member Posts: 670 Pioneering
    I'm 1 day ahead everyone sorry 🙏
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